ArticleBMC psychiatry2021
Family involvement and patient-experienced improvement and satisfaction with care: a nationwide cross-sectional study in Danish psychiatric hospitals.
Article in BMC psychiatry, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Next of kin involvement in mental health care services - a systematic participatory overview of evidence syntheses.BMC psychiatry · 2026Pooled it
- A Pilot Trial Evaluating Collaborative Healthcare Encounters With Caregivers: A Checklist-Based Intervention for Primary Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Trial
- Becoming diplomats with boundaries - a thematic analysis of relatives' experiences with group-based psychoeducation about bipolar disorder.BMC psychiatry · 2025Trial
- "It has to be part of the clinic's lived culture"- perspectives of next of kin on meaningful participation in psychiatric care: a participatory thematic analysis.BMC psychiatry · 2026Article
- Rethinking networks through relatedness - a qualitative study among inpatients in forensic psychiatry.Frontiers in psychiatry · 2026Article
- Self-Reported Burden Among Informal Caregivers of Patients Receiving Psychiatric Hospital Treatment: A National Cross-Sectional Study.International journal of mental health nursing · 2025Article
- "As if we didn't exist" - A participatory reflexive thematic analysis on next of kins' experiences of their interactions with the psychiatric health care system in Germany.BMC psychiatry · 2025Article
- Exploring the Meaning of Collaboration in Rural Mental Healthcare Delivery From the Perspective of Mental Health Clinicians and Informal Carers of People Living With a Mental Health Illness-A Qualitative Study.International journal of mental health nursing · 2025Article
- Correlation Between Social Support, Patient Satisfaction, and Associated Factors in Patients with Schizophrenia.Cureus · 2025Article
- Patient-Reported Experience Measures for In- and Outpatients in Mental Health and Substance Use Services: Psychometric Properties and Results From a Nationwide Survey in Finland.International journal of methods in psychiatric research · 2025Article
- Exploring the needs of family caregivers of people living with mental illness: a qualitative study in Lobatse, Botswana.BMC nursing · 2025Article
- Measuring the social support network in autistic clients: development and validation of the Network in Action-Interview.Frontiers in psychology · 2025Article
- How subjective well-being, patient-reported clinical improvement (PROMs) and experience of care (PREMs) relate in an acute psychiatric care setting?European psychiatry : the journal of the Association of European Psychiatrists · 2023Article
- Measures used to assess interventions for increasing patient involvement in Danish healthcare setting: a rapid review.BMJ open · 2022Review
- Patients' and family members' experiences of psychiatric inpatient services in China: a comparison based on a dyadic design.Social psychiatry and psychiatric epidemiology · 2022Article
- Family Perspectives Related to Caring for Mental Health Care Users: A Case Study in the Long-Term Mental Health Institutions of Limpopo Province, South Africa.International journal of environmental research and public health · 2022Article
- Barriers to WHO Mental Health Action Plan updates to expand family and caregiver involvement in mental healthcare.General psychiatry · 2022Article
- Mental Healthcare Consumers' Experiences of Mental Health Care: Variation in Knowledge by the Family Members and Support.SAGE open nursingArticle
Corrections and comments
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Authors and funding
5 authors.
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Abstract
backgroundRandomised controlled trials suggest that family therapy has a positive effect on the course of depression, schizophrenia and anorexia nervosa. However, it is largely unknown whether a positive link also exists between caregiver involvement and patient outcome in everyday psychiatric hospital care, using information reported directly from patients, i.e. patient-reported experience measures (PREM), and their caregivers. The objective of this study is to examine whether caregiver-reported involvement is associated with PREM regarding patient improvement and overall satisfaction with care.
methodsUsing data from the National Survey of Psychiatric Patient Experiences 2018, we conducted a nationwide cross-sectional study in Danish psychiatric hospitals including patients and their caregivers who had been in contact with the hospital (n = 940 patients, n = 1008 caregivers). A unique patient identifier on the two distinct questionnaires for the patient and their caregiver enabled unambiguous linkage of data. In relation to PREM, five aspects of caregiver involvement were analysed using logistic regression with adjustment for patient age, sex and diagnosis.
resultsWe consistently find that high caregiver-reported involvement is statistically significantly associated with high patient-reported improvement and overall satisfaction with care with odds ratios (OR) ranging from 1.69 (95% confidence interval (CI) 0.95-2.99) to 4.09 (95% CI 2.48-6.76). This applies to the following aspects of caregiver-reported involvement: support for the patient-caregiver relationship, caregiver information, consideration for caregiver experiences and the involvement of caregivers in decision making. No statistically significant association is observed regarding whether caregivers talk to the staff about their expectations for the hospital contact.
conclusionThis nationwide study implies that caregiver involvement focusing on the patient-caregiver relationship is positively associated with patient improvement and overall satisfaction with care in everyday psychiatric hospital care.
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