ArticleMedicine, health care, and philosophy2021
In the name of the family? Against parents' refusal to disclose prognostic information to children.
Article in Medicine, health care, and philosophy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 22 citations in OpenAlex.
- Advance care planning with patients of Islamic migration background: a qualitative study identifying the need for relational autonomy and hope-sustaining communication.BMC palliative care · 2026Article
- Involving Adolescents in Decision-Making in Pediatric Organ Transplantation: A Qualitative Study in Switzerland.Pediatric transplantation · 2025Article
- Misattributed paternity discovery: A critique of medical organizations' recommendations.American journal of human genetics · 2025Review
- "There's So Much More Support We Could Have Provided": Child Life Specialists' Stories of the Challenges Working in Adult Oncology.Qualitative health research · 2024Article
- The Vagueness of Integrating the Empirical and the Normative: Researchers' Views on Doing Empirical Bioethics.Journal of bioethical inquiry · 2024Article
- Experiences and preferences of truth-telling in families of children with cancer: A phenomenological study.Asia-Pacific journal of oncology nursing · 2024Article
- Article
- ChatGPT as a Way to Enhance Parents’ Communication in Cases of Oncological Pediatric DiseasesTurkish journal of haematology : official journal of Turkish Society of Haematology · 2023Article
- Acceptable objectives of empirical research in bioethics: a qualitative exploration of researchers' views.BMC medical ethics · 2022Article
- Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer.Children (Basel, Switzerland) · 2022Article
- Communication about diagnosis and prognosis-A population-based survey among bereaved parents in pediatric oncology.Psycho-oncology · 2022Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 2 countries.
Funding
Abstract
Parents frequently attempt to shield their children from distressing prognostic information. Pediatric oncology providers sometimes follow parental request for non-disclosure of prognostic information to children, invoking what we call the stability of the family argument. They believe that if they inform the child about terminal prognosis despite parental wishes, cohesion and family structure will be severely hampered. In this paper, we argue against parental request for non-disclosure. Firstly, we present the stability of the family argument in more detail. We, then, set out the (conceptual, legal, systemic) entitativity of the family and the kind of value the stability of the family argument assumes, before we set on to critically evaluate the argument. Our analysis shows that disclosure of prognostic information to children does not necessarily destabilize the family to a greater extent than non-disclosure. In fact, a systemic perspective suggests that mediated disclosure is more likely to result in a (long-term) stability of the family than non-disclosure. It is in the interest of the family to resist the initial aversive reaction to delivering bad news. In the final part, we draw a set of recommendations on how to facilitate decision-making in face of parental request for non-disclosure.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.