ArticleJournal of genetic counseling2021
Social support networks of adults with sickle cell disease.
Article in Journal of genetic counseling, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 14 citations in OpenAlex.
- Love vs. Risk: Women with Sickle Cell Disease Face Reproductive Decision-Making Dilemmas.International journal of environmental research and public health · 2025Article
- Depression and Its Determinants Among Patients With Sickle Cell Disease: A Cross-Sectional Study.Public health challenges · 2024Article
- "The Patient Should Have a Choice": Adults with Sickle Cell Disease Advise Integration of Telemedicine into the Comprehensive Sickle Cell Disease Care Model.Journal of racial and ethnic health disparities · 2024Article
- Self-management needs, strategies and support for individuals with sickle cell disease in developing countries: a scoping review.BMJ open · 2024Article
- Burden of employment loss and absenteeism in adults and caregivers of children with sickle cell disease.Blood advances · 2024Article
- Outlooks on using a mobile health intervention for supportive pain management for children and adolescents with cancer: a qualitative study.BMC nursing · 2023Article
- Variability in sickle cell knowledge by sickle cell status.Journal of genetic counseling · 2023Article
- Sickle cell disease and adolescents' perspectives on self-care management resources.Health care transitions · 2023Article
- Adapting a conceptual framework to engage diverse stakeholders in genomic/precision medicine research.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Transition in Sickle Cell Disease (SCD): A German Consensus Recommendation.Journal of personalized medicine · 2022Article
- "Into the Lion's Den": COVID-19 Experiences of Black Adults with Sickle Cell Disease.Qualitative health research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
Sickle cell disease (SCD) can cause both physical and psychological complications, such as severe pain and depression. These effects often necessitate social and caregiving support. Few studies have assessed support networks within the adult SCD population. Here, we describe the support networks of adults with SCD and identify who in these networks (1) provides emotional support, (2) is dependable during crisis situations, including social and financial adversities, and (3) provides assistance in health crises. Forty-nine adults with SCD completed surveys and social network assessments through interview. Generalized mixed-effects linear regression models were fitted to investigate the composition of support provision within these personal networks. Our findings indicate that parents and 'other important people' (e.g., friends, spouses) play key roles in the support provided to those with SCD. Siblings with SCD appeared to be more emotionally supportive than unaffected siblings. With much research centered around the pediatric and adolescent SCD populations, focus needs to extend to adults and the individuals involved in their care and disease management. Understanding the flow of support within these networks can help genetic counselors and healthcare providers to better identify both social ties that serve as support resources and less supportive relationships for individuals living with SCD and other chronic genetic conditions that might be targeted for intervention.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.