ArticleBMJ open2021
Practitioners' perceptions of acceptability of a question prompt list about palliative care for advance care planning with people living with dementia and their family caregivers: a mixed-methods evaluation study.
Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
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Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic review of psychometric properties of questionnaires assessing activities of daily living among older adults with neurocognitive disorders.Australian occupational therapy journal · 2025Pooled it
- Interventions for interpersonal communication about end of life care between health practitioners and affected people.The Cochrane database of systematic reviews · 2022Pooled it
- Assessing Advance Care Planning Fidelity within the Context of Cognitive Impairment: The SHARE Trial.Journal of pain and symptom management · 2024Trial
- Bridging the difficult talk: dentists' perception of a patient-centred communication aid to improve oral cancer early detection.BMC oral health · 2026Article
- Developing a question prompt tool to prevent and manage early cardiovascular disease after hypertensive pregnancy: qualitative interviews with women and clinicians.BMC women's health · 2024Article
- Resources to Support Decision-Making Regarding End-of-Life Nutrition Care in Long-Term Care: A Scoping Review.Nutrients · 2024Article
- Developing a question prompt list for family caregivers concerning the progression and palliative care needs of nursing home residents living with dementia.PEC innovation · 2023Article
- Optimizing the design and implementation of question prompt lists to support person-centred care: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Talking about Meaning and Loss with Relatives of Persons with Dementia: An Ethnographic Study in a Nursing Home.Geriatrics (Basel, Switzerland) · 2023Article
- Occurrence and Timing of Advance Care Planning in Persons With Dementia in General Practice: Analysis of Linked Electronic Health Records and Administrative Data.Frontiers in public health · 2022Article
- Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries.Geriatrics (Basel, Switzerland) · 2021Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesIn oncology and palliative care, patient question prompt lists (QPLs) with sample questions for patient and family increased patients' involvement in decision-making and improved outcomes if physicians actively endorsed asking questions. Therefore, we aim to evaluate practitioners' perceptions of acceptability and possible use of a QPL about palliative and end-of-life care in dementia.
designMixed-methods evaluation study of a QPL developed with family caregivers and experts comprising a survey and interviews with practitioners.
settingTwo academic medical training centres for primary and long-term care in the Netherlands.
participantsPractitioners (n=66; 73% woman; mean of 21 (SD 11) years of experience) who were mostly general practitioners and elderly care physicians. OUTCOMES: The main survey outcome was acceptability measured with a 15-75 acceptability scale with ≥45 meaning 'acceptable'.
resultsThe survey response rate was 21% (66 of 320 participated). The QPL was regarded as acceptable (mean 51, SD 10) but 64% felt it was too long. Thirty-five per cent would want training to be able to answer the questions. Those who felt unable to answer (31%) found the QPL less acceptable (mean 46 vs 54 for others; p=0.015). We identified three themes from nine interviews: (1) enhancing conversations through discussing difficult topics, (2) proactively engaging in end-of-life conversations and (3) possible implementation.
conclusionAcceptability of the QPL was adequate, but physicians feeling confident to be able to address questions about end-of-life care is crucial when implementing it in practice, and may require training. To facilitate discussions of advance care planning and palliative care, families and persons with dementia should also be empowered to access the QPL themselves.
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