ArticleBMC health services research2021
Experiences of Inuit in Canada who travel from remote settings for cancer care and impacts on decision making.
Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Interventions for Indigenous Peoples making health decisions: a systematic review.Archives of public health = Archives belges de sante publique · 2023Pooled it
- Racism in Inuit experiences in healthcare: findings from an environmental scan.International journal of circumpolar health · 2026Review
- A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq.International journal of circumpolar health · 2025Article
- Enhancing the Cancer Care Journey for Indigenous Patients: A Guide for Oncology Nurses.Current oncology (Toronto, Ont.) · 2025Article
- Cancer-related care for rural and remote populations in Canada: A scoping review.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025Article
- A Scoping Review of the Current Knowledge of the Social Determinants of Health and Infectious Diseases (Specifically COVID-19, Tuberculosis, and H1N1 Influenza) in Canadian Arctic Indigenous Communities.International journal of environmental research and public health · 2024Article
- Lung cancer in First Nations, Inuit, and Métis peoples in Canada - a scoping review.International journal of circumpolar health · 2024Article
- Review
- Mitigating the impact of the COVID-19 pandemic on Inuit living in Manitoba: community responses.International journal of circumpolar health · 2023Article
- Examining structural factors influencing cancer care experienced by Inuit in Canada: a scoping review.International journal of circumpolar health · 2023Article
- Trends in Inuit health services utilisation in Manitoba: findings from theInternational journal of circumpolar health · 2022Article
- Shifting paradigm from biomedical to decolonised methods in Inuit public health research in Canada: a scoping review.BMJ global health · 2022Article
- Sâkipakâwin: Assessing Indigenous Cancer Supports in Saskatchewan Using a Strength-Based Approach.Current oncology (Toronto, Ont.) · 2021Article
- Health System Enablers and Barriers to Continuity of Care for First Nations Peoples Living with Chronic Disease.International journal of integrated careArticle
Corrections and comments
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Authors and funding
16 authors.
Funding
Abstract
backgroundInuit experience the highest cancer mortality rates from lung cancer in the world with increasing rates of other cancers in addition to other significant health burdens. Inuit who live in remote areas must often travel thousands of kilometers to large urban centres in southern Canada and negotiate complex and sometimes unwelcoming health care systems. There is an urgent need to improve Inuit access to and use of health care. Our study objective was to understand the experiences of Inuit in Canada who travel from a remote to an urban setting for cancer care, and the impacts on their opportunities to participate in decisions during their journey to receive cancer care.
methodsWe are an interdisciplinary team of Steering Committee and researcher partners ("the team") from Inuit-led and/or -specific organizations that span Nunavut and the Ontario cancer health systems. Guided by Inuit societal values, we used an integrated knowledge translation (KT) approach with qualitative methods. We conducted semi-structured interviews with Inuit participants and used process mapping and thematic analysis.
resultsWe mapped the journey to receive cancer care and related the findings of client (n = 8) and medical escort (n = 6) ("participant") interviews in four themes: 1) It is hard to take part in decisions about getting health care; 2) No one explains the decisions you will need to make; 3) There is a duty to make decisions that support family and community; 4) The lack of knowledge impacts opportunities to engage in decision making. Participants described themselves as directed, with little or no support, and seeking opportunities to collaborate with others on the journey to receive cancer care.
conclusionsWe describe the journey to receive cancer care as a "decision chain" which can be described as a series of events that lead to receiving cancer care. We identify points in the decision chain that could better prepare Inuit to participate in decisions related to their cancer care. We propose that there are opportunities to build further health care system capacity to support Inuit and enable their participation in decisions related to their cancer care while upholding and incorporating Inuit knowledge.
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