ArticleSocial science & medicine (1982)2021
The extent and predictors of discrepancy between provider and recipient reports of informal caregiving.
Article in Social science & medicine (1982), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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The trial behind it
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Who cites it
9 citing papers in PubMed, 18 citations in OpenAlex.
- Measuring and valuing spillover effects in caregivers and families: A scoping review.PloS one · 2026Article
- Factors associated with the identification and well-being of hidden and confirmed carers: a dyad analysis.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Associations Between Informal Caregiving and Physical Functioning: A Longitudinal Analysis of Dutch Older Adults.The Gerontologist · 2025Article
- Article
- Projected costs of informal care for older people in England.The European journal of health economics : HEPAC : health economics in prevention and care · 2024Article
- Informal care at old age at home and in nursing homes: determinants and economic value.The European journal of health economics : HEPAC : health economics in prevention and care · 2024Article
- Support Now to Care Later: Intergenerational Support Exchanges and Older Parents' Care Receipt and Expectations.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
- A Comparison of Methods for Identifying Informal Carers: Self-Declaration Versus a Time Diary.PharmacoEconomics · 2022Article
- Informal care provision among male and female working carers: Findings from a Swedish national survey.PloS one · 2022Article
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
Abstract
Informal care research mainly relies upon carers reporting that they provide this type of care. Little is known about whether reports from recipients would produce similar information. We explore whether providers and recipients are in agreement with each other's reports of informal care at the extensive and intensive margin and whether particular characteristics of providers and recipients predict any discrepancies. Using data from the 2015-2017 wave of the UK Household Longitudinal Study (UKHLS), we find that among those who reported receiving informal care a provider confirmed only 37.5% of these. Each additional restriction on activities and instrumental activities of daily living for a recipient increases the probability of agreement by 5.2 and 9.3 percentage points, respectively. When both parties report informal care, providers report on average 10.55 (37%) more hours per week compared to recipients. This represents an annual difference of £12,081 using the replacement monetary valuation method. If we rely on recipient reports, we may be more likely to capture how many in the population are caregivers. However, we may also be less likely to capture the full hours of care for each caregiver. These discrepancies in reported caregiving affect studies of the consequences of caregiving and economic evaluations of interventions that impact on caregiving.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.