ArticlePsycho-oncology2021
A conceptual model of fertility concerns among adolescents and young adults with cancer.
Article in Psycho-oncology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 30 citations in OpenAlex.
- Reproductive concerns and fertility intention among reproductive-age Chinese women with breast cancer: A multiple mediation analysis.Asia-Pacific journal of oncology nursing · 2026Article
- Desire for future children and interest in consultation with a fertility specialist among adolescent and young adult (AYA) cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- A conceptual model of cancer care and lived experiences in adolescents and young adults with cancer: results from the multi-national European STRONG AYA project.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Fertility Preservation Pathways in Young Women With Breast Cancer: A Single-Center Analysis in a Publicly Funded System.Annals of surgical oncology · 2026Article
- The protective role of self-esteem for functional well-being in the context of cancer-related distress among young adults with cancer.Journal of behavioral medicine · 2026Article
- Illness Experiences in Young and Middle-Aged Patients With Dilated Cardiomyopathy on Chinese Social Media: Qualitative Study.Journal of medical Internet research · 2026Article
- Presenting a conceptual model for decision support systems in infertility: A developmental study.International journal of reproductive biomedicine · 2025Article
- Fertility Information Perceptions and Needs of People with Cancer, Their Family Members, and Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Perceived impact of a decision-aid and planning tool for family building after cancer for young adult female cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Designing Patient-Reported Measures of Fertility: Cognitive Interview Findings from Adolescents and Young Adults with Cancer.Journal of adolescent and young adult oncology · 2025Article
- Behind closed doors: a qualitative study exploring the content of fertility discussions between oncologists and their adolescent and young adult cancer patients from the perspective of oncologists at an NCI-designated comprehensive cancer center.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Cancer and Fertility: Exploring Uncertainty Management Strategies of Young Adult Female Survivors.Journal of adolescent and young adult oncology · 2024Article
- A Patient-Centered Conceptual Model of AYA Cancer Survivorship Care Informed by a Qualitative Interview Study.Cancers · 2024Article
- Websites about, not for, adolescents? A systematic analysis of online fertility preservation information for adolescent and young adult cancer patients.Journal of cancer survivorship : research and practice · 2024Article
- Self-disclosure, perceived social support, and reproductive concerns among young male cancer patients in China: A mediating model analysis.Asia-Pacific journal of oncology nursing · 2024Article
- Differentiating gender-based reproductive concerns among adolescent and young adult cancer patients: A mixed methods study.Journal of psychosocial oncology · 2024Article
- Advanced Cancer in Young Adults (YAs): Living in a Liminal Space.Qualitative health research · 2024Article
- Review
- Fertility preservation in reproductive-aged female patients with colorectal cancer: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Greater fertility distress and avoidance relate to poorer decision making about family building after cancer among adolescent and young adult female survivors.Psycho-oncology · 2023Article
Corrections and comments
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Authors and funding
10 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveFor adolescents and young adults (AYAs), cancer-related fertility concerns (FC) are salient, disruptive, and complex. Clinical communication about FC and fertility preservation options are suboptimal, increasing patient distress. The purpose of this study is to construct a conceptual model of FC among AYAs with cancer to inform future measurement development.
methodsConcept elicitation interviews were conducted with a purposive sample of stakeholders: 36 AYAs (10 adolescents, 12 emerging adults, and 14 young adults), 36 AYA oncology health care providers, and 12 content experts in cancer-related infertility. The constant comparative method was used to identify themes and properties that illustrate AYAs' conceptualization and/or experience of FC.
resultsThirteen themes characterized FC among AYAs with cancer, varying by stakeholder group and domain affiliations. Themes were grouped by four domains (e.g., affective, information, coping, and logistical), which organized the conceptual model. Affective experiences were further determined to be an important component within the other three domains. AYAs' fertility and fertility preservation experiences were shaped by communication factors and timing factors including placement along the lifespan/cancer continuum.
conclusionsAYA FC are characterized by uncertainty and confusion that may contribute to future decisional regret or magnify feelings of loss. Results add to previous research by examining individual, relational, and health care factors that fluctuate to inform fertility preservation perceptions and decision-making across the AYA age spectrum. Findings will be used to develop and test new self-report measures of FC among AYAs with cancer and survivors using classic and modern measurement theory approaches.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.