Evidence map›Paper›PMID 33840617›Full record

ArticleDisability and health journal2021

New obstacles and widening gaps: A qualitative study of the effects of the COVID-19 pandemic on U.S. adults with disabilities.

Sabrina Epstein, Jessica Campanile, Caroline Cerilli, Prateek Gajwani, Varshini Varadaraj, Bonnielin K Swenor

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Disability and health journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed
5.0field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 67 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Sabrina EpsteinJohns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA.
Jessica CampanileJohns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA.
Caroline CerilliJohns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA.
Prateek GajwaniJohns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA; The Wilmer Eye Institute, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Varshini VaradarajJohns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA; The Wilmer Eye Institute, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Bonnielin K SwenorJohns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA; The Wilmer Eye Institute, Johns Hopkins School of Medicine, Baltimore, MD, USA; Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. Electronic address: bswenor@jhmi.edu.
Johns Hopkins University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPrior research has demonstrated that the needs of the disability community have not been met during public health emergencies. The COVID-19 pandemic has exacerbated existing inequities for many populations including people with disabilities, and data is needed to develop inclusive public health response policies.

objectiveTo identify how COVID-19 has uniquely impacted the lives of adults with disabilities.

methods38 participants were recruited through disability advocacy groups and social media. Semi-structured virtual focus groups were conducted with adults (≥18 years) who self-identified as having a disability. Focus groups were conducted for each of six disability sub-groups: vision, hearing, mobility and physical, mental health, cognitive, intellectual, and developmental, and chronic illness. Using inductive coding, major themes were identified and compared across the disability sub-groups.

resultsThree major themes and thirteen sub-themes were identified from the focus groups. The three major themes comprised: new problems created by the pandemic, obstacles in daily life that were exacerbated by the pandemic, and broader changes to accessibility and disability identity. Sub-themes such as difficulty with COVID-19 testing and regular medical care were reported by participants of all disability sub-groups, while other sub-themes like direct care needs and medical rationing were reported by participants from a subset of the disability sub-groups.

conclusionsThese results indicate how the COVID-19 pandemic unequally impacts disabled people. The participants indicated that to fully address their needs, disability perspectives must be included in the public health pandemic response. As new research shows that COVID-19 can cause long-term disability, the urgency to ensure the disability community is part of public health policies will increase.

Indexed as

COVID-19Persons with DisabilitiesAdultCOVID-19 TestingHumansPandemicsSARS-CoV-2COVID-19Disability equityDisability healthEmergency responseQualitative

Identifiers

PMID33840617
PMCPMC9760300
OpenAlexW3149405740

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.