Evidence map›Paper›PMID 33838052›Full record

ArticleActa paediatrica (Oslo, Norway : 1992)2021

Paediatric patients report lower health-related quality of life in daily clinical practice compared to new normative PedsQL

Maud M van Muilekom, Michiel A J Luijten, Hedy A van Oers, Thirsa Conijn, Heleen Maurice-Stam, Johannes B van Goudoever, Martha A Grootenhuis, Lotte Haverman, KLIK collaborator group

Abstract read
In one paragraph

Article in Acta paediatrica (Oslo, Norway : 1992), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed.

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  11. Structured Multidisciplinary Follow-Up After Pediatric Intensive Care: A Model for Continuous Data-Driven Health Care Innovation.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2023
    Observational
  12. Article
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  15. The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department.International journal of environmental research and public health · 2022
    Article
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  17. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Maud M van MuilekomDepartment of Child and Adolescent Psychiatry and Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-9540-6254
Michiel A J LuijtenDepartment of Child and Adolescent Psychiatry and Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-8016-2859
Hedy A van OersDepartment of Child and Adolescent Psychiatry and Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-7342-4953
Thirsa ConijnDepartment of Child and Adolescent Psychiatry and Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.
Heleen Maurice-StamPrincess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.
Johannes B van GoudoeverDepartment of Pediatrics, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Vrije Universiteit, Amsterdam, The Netherlands.
Martha A GrootenhuisPrincess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.
Lotte HavermanDepartment of Child and Adolescent Psychiatry and Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-7849-0562
KLIK collaborator group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo compare Health-Related Quality of Life (HRQOL) of paediatric patients with newly collected HRQOL data of the general Dutch population, explore responses to individual items and investigate variables associated with HRQOL.

methodsChildren (8-12y) and adolescents (13-17y) from the general population (N = 966) and from a paediatric population (N = 1209) completed the Pediatric Quality of Life Inventory (PedsQL

resultsPaediatric patients reported worse HRQOL than the general population on all PedsQL

conclusionPaediatric patients reported lower HRQOL than the general population, and school absence, female gender and younger age were associated with lower HRQOL. The results underline the importance to structurally monitor paediatric patients' HRQOL in clinical practice to detect problems and offer the right help on time.

Indexed as

Quality of LifeAdolescentChildFemaleHumansSurveys and Questionnairesclinical practicehealth-related quality of lifepaediatric patientspatient-reported outcome measuresPediatric Quality of Life Inventory

Identifiers

PMID33838052
PMCPMC8360011

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.