Evidence map›Paper›PMID 33837298›Full record

ArticleSpinal cord2021

Media portrayal of spinal cord injury and its impact on lived experiences: a phenomological study.

Leanne Rees, Merryn Sherwood, Nora Shields

Abstract read
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In one paragraph

Article in Spinal cord, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Leanne ReesSchool of Allied Health, Human Services and Sport, La Trobe University, Melbourne, VIC, Australia. Leanne.Rees@latrobe.edu.au.ORCID http://orcid.org/0000-0002-7911-2464
Merryn SherwoodDepartment of Politics, Media and Philosophy, La Trobe University, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0003-3671-3304
Nora ShieldsSchool of Allied Health, Human Services and Sport, La Trobe University, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0002-6840-2378

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

STUDY

designThis is a qualitative, phenomenological study.

objectiveTo investigate media portrayal of spinal cord injury (SCI) as perceived by people with SCI and explore its impact on their lived experience.

settingPeople with SCI living in Australia.

methodTwenty-four participants, recruited using purposive and snowball sampling, completed in-depth, semi-structured interviews. Thematic data analysis followed an inductive, iterative process.

resultsParticipants perceived media portrayed SCI through a narrow lens, describing how people with SCI were 'absent' or portrayed as either 'pity or pedestal'. Participants said media portrayed an inaccurate picture of their lived experience that perpetuated misunderstandings of SCI. This portrayal fostered unreasonable public expectations and assumptions about living with SCI, which presented in the participant's lives as uncomfortable interactions and inappropriate remarks. The impact for participants was a burden to explain SCI and justify what it meant for them. People with SCI would like media to portray a broader, more authentic representation of SCI to improve public understanding and to reduce the negative impact on their lives.

conclusionPeople with SCI perceived a narrow and inaccurate portrayal of SCI in media that overlooked potential quality of life, overshadowed health and life domains they considered important and reinforced the idea that SCI can be overcome. People with SCI were mostly concerned with what was absent in media portrayal of SCI rather than what was present. Action for change lies in promoting information, expanding narratives and raising awareness to diverse abilities of people with SCI.

Indexed as

Quality of LifeSpinal Cord InjuriesAustraliaHumansQualitative Research

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.