SynthesisPalliative medicine2021
Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review.
Synthesis in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 25 citations in OpenAlex.
- Pooled it
- Understanding pain in malignant mesothelioma: a prospective, longitudinal cohort study.BMC palliative care · 2026Observational
- The provision of psychological care for patients with mesothelioma and their caregivers: an Italian survey.Frontiers in public health · 2026Article
- Palliative and end-of-life care for patients with pleural mesothelioma: A cohort study.Palliative medicine · 2025Article
- Navigating chronic uncertainty: a theory synthesis for nursing communication in life-limiting illness.BMC nursing · 2024Article
- Development of Patient and Caregiver Conceptual Models Investigating the Health-Related Quality of Life Impacts of Malignant Pleural Mesothelioma.The patient · 2024Article
- Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Clinical nurse specialist role in providing generalist and specialist palliative care: A qualitative study of mesothelioma clinical nurse specialists.Journal of advanced nursing · 2022Article
- Dying of mesothelioma: A qualitative exploration of caregiver experiences.European journal of cancer care · 2022Article
- Living beyond expectations: a qualitative study into the experience of long-term survivors with pleural mesothelioma and their carers.BMJ open respiratory research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with mesothelioma and their families have palliative care needs throughout the relatively short trajectory of their illness.
aimTo describe the palliative care needs and experiences of people with mesothelioma and their family carers.
designIntegrative systematic review with narrative synthesis (PROSPERO: CRD42020190115). DATA SOURCES: MEDLINE, CINAHL, PsycINFO and the Cochrane Library were searched for articles published between 01 January 2000 and 10 May 2020. Articles were included if they presented empirical studies or comprehensive reviews including information about the palliative care needs and experiences of people with mesothelioma and their family carers.
resultsThe search yielded 508 articles, 14 were included in the analysis. A cross cutting theme of 'uncertainty' was identified encompassing five themes: (1) organisation and co-ordination of services, (2) communication and information needs, (3) management of care needs and high symptom burden, (4) consideration of the impact of seeking compensation and (5) family carer needs. Our findings demonstrate that people with mesothelioma want a co-ordinated, team-based approach to palliative care with a named point of contact. Whilst carers value and benefit from early referral to specialist palliative care, this does not necessarily reflect the outcomes and views of patients.
conclusionThe evidence base around the palliative care needs and experiences of people with mesothelioma and their carers needs to be strengthened. The results of this review support the need to develop a greater understanding about the role non-specialist palliative care clinicians' play in providing generalist palliative care for people with mesothelioma and their carers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.