Evidence map›Paper›PMID 33825134›Full record

ArticleCanadian journal of public health = Revue canadienne de sante publique2021

A scoping review of COVID-19 experiences of people living with dementia.

Juanita-Dawne R Bacsu, Megan E O'Connell, Claire Webster, Lisa Poole, Mary Beth Wighton, Saskia Sivananthan

Open access · hybridAbstract readScoping Review
In one paragraph

Article in Canadian journal of public health = Revue canadienne de sante publique, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
32citing papers in PubMed, 2 pooled it
9.3field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 69 citations in OpenAlex.

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  12. Telehealth Support for Dementia Caregivers During the COVID-19 Pandemic: Lessons Learned From the NYU Family Support Program.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2023
    Article
  13. '24/7' Caregiving: A Qualitative Analysis of an Emerging Phenomenon of Interest in Caregiving.International journal of environmental research and public health · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Juanita-Dawne R BacsuDepartment of Psychology, Rural Dementia Action Research (RaDAR) Team, Canadian Centre for Health and Safety in Agriculture (CCHSA), University of Saskatchewan, Saskatoon, Saskatchewan, S7N 5A5, Canada. juanita.bacsu@usask.ca.ORCID 0000-0002-2819-1617
Megan E O'ConnellDepartment of Psychology, Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Arts 182, 9 Campus Drive, Saskatoon, SK, S7N 5A5, USA.
Claire WebsterCaregiver Crosswalk Inc., Montreal, Canada.
Lisa PooleDementia Advocacy Canada, Toronto, Canada.
Mary Beth WightonDementia Advocacy Canada, Toronto, Canada.
Saskia SivananthanAlzheimer Society of Canada, Toronto, Canada.
Toronto Dementia Research Alliance · CAAlzheimer Society of Canada · CASaskatchewan Health Authority · CAUniversity of Saskatchewan · CA

Funding

CCNA JDB is a PDF whose trainee salary is partially funded by Team 15 in the Canadian Consortium on Neurodegeneration in Aging (CCNA). CCNA is supported by a grant from the Canadian Institutes of Health Research with funding from several partners including the Saskatchewan Health Research Foundation, the Centre for Aging and Brain Health, and the Alzheimer Society of Canada (ASC). The ASC COVID Task Force was a particular catalyst for this work.
6 · The paper itself

Abstract

objectivesCompared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthesize the existing literature on the COVID-19 experiences of people with dementia and their care partners.

methodsFollowing Arksey and O'Malley's scoping review framework, we searched five electronic databases (Scopus, PubMed, CINAHL, EMBASE, and Web of Science) and an online search engine (Google Scholar). Inclusion criteria consisted of English-language articles focusing on the COVID-19 experiences of people with dementia and their care partners. SYNTHESIS: Twenty-one articles met our inclusion criteria: six letters to the editor, seven commentaries, and eight original research studies. In the literature, five main themes were identified: (i) care partner fatigue and burnout; (ii) lack of access to services and supports; (iii) worsening neuropsychiatric symptoms and cognitive function; (iv) coping with COVID-19; and (v) the need for more evidence-informed research. Factors such as living alone, having advanced dementia, and the length of confinement were found to exacerbate the impact of COVID-19.

conclusionUrgent action is needed to support people living with dementia and their care partners in the pandemic. With little access to supports and services, people with dementia and their care partners are currently at a point of crisis. Collaboration and more evidence-informed research are critical to reducing mortality and supporting people with dementia during the pandemic.

Indexed as

CaregiversCOVID-19DementiaHumansAlzheimer’s diseaseCoronavirusCOVID-19DementiaSynthesis

Identifiers

PMID33825134
PMCPMC8023523
OpenAlexW3142239621

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.