Evidence map›Paper›PMID 33817751›Full record

ArticleDysphagia2022

Emotional and Psychological Effects of Dysphagia: Validation of the Jugendwerk Dysphagia Emotion and Family Assessment (JDEFA).

Stefan Bushuven, Isabell Niebel, Johanna Huber, Paul Diesener

Registry-linked trialOpen access · bronzeAbstract read
In one paragraph

Article in Dysphagia, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06587555 (Correlations Between Symptoms of Anxiety And/or Depression with Dysphagia Severity Level), which is not on this map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
4.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06587555 not yet recruitingnot on this mapstarted 2024, after this paper: background citation

Correlations Between Symptoms of Anxiety And/or Depression with Dysphagia Severity Level

Typeobservational_patient_registrySponsorUniversitas PadjadjaranRan2024 to 2025Enrolled30ConditionsDysphagia, Anxiety, Depression
3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.

  1. Guideline
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  8. Depression and Anxiety in Patients with Oropharyngeal Dysphagia Evaluated by Fiberoptic Endoscopic Evaluation of Swallowing (FEES).Medical science monitor : international medical journal of experimental and clinical research · 2025
    Article
  9. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 3 countries.

Stefan BushuvenDepartment of Neurorehabilitation, Hegau-Jugendwerk Gailingen, Healthcare Association Constance (GLKN), Gailingen, Germany. Stefan.bushuven@glkn.de.ORCID 0000-0001-6272-0714
Isabell NiebelDepartment of Neurorehabilitation, Hegau-Jugendwerk Gailingen, Healthcare Association Constance (GLKN), Gailingen, Germany.
Johanna HuberInstitute for Medical Education, University Hospital, LMU Munich, Munich, Germany.
Paul DiesenerDepartment of Neurorehabilitation, Hegau-Jugendwerk Gailingen, Healthcare Association Constance (GLKN), Gailingen, Germany.
LMU Klinikum · DELudwig-Maximilians-Universität München · DE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPatients suffering from swallowing disorders are experiencing emotional effects like anger, anxiety, and sadness. This may be affecting patient-therapist relation and family functioning. To assess emotional reaction and their influence on family systems, we developed a 55-item questionnaire based on the Atlas of Emotion and the Calgary Family Intervention Model.

methodsWe recruited more than 160 participants to validate an online survey, namely the Jugendwerk Dysphagia Emotion and Family Assessment Score (JDEFA). Forty-Nine health care workers, patients, and family members completed the survey and provided additional comments regarding interactions of emotions and dysphagia. Analysis was accomplished by non-parametric tests and principal component analyses with Varimax rotation. Additionally, we accomplished a qualitative content analysis taking a phenomenological single-coder approach.

resultsAnalysis revealed a Cronbach's Alpha of 0.93. Using primary component analyses, justified by a Kaiser-Meyer-Olkin value of 0.81, we identified two main factors (emotion and family). Patients experienced sadness and anger more often than health care providers, whereas family members felt anxiety even more often. Our qualitative analysis revealed 20 themes (7 for anger, 2 enjoyment, 4 sadness, 3 anxiety, 2 disgust, 1 shame, and 1 punishment). Predominantly, the fear of choking was mentioned by patients, whereas professionals reported about the fear of making mistakes.

conclusionThe JDEFA is a valid and reliable testing tool for the assessment of swallowing disorders concerning emotional aspects and family functioning. Both factors have a significant role in dysphagia and evaluations should go along with functional assessments and psychological scores for a holistic understanding of swallowing disorders.

Indexed as

Deglutition DisordersAngerEmotionsHumansSurveys and QuestionnairesDysphagiaEmotionQuestionnaireRehabilitationSpeech and language therapySurvey

Identifiers

PMID33817751
PMCPMC8019588
OpenAlexW3142880657

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.