ArticleGlobal pediatric health2021
Caregivers' Experiences with Caring for a Child Living with HIV/AIDS: A Qualitative Study in Northern Ghana.
Article in Global pediatric health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 24 citations in OpenAlex.
- Preliminary Impact of Group-Based Interventions on Stigma and the Mental Health of Caregivers of Adolescents Living with HIV in Uganda.AIDS and behavior · 2024Trial
- Navigating Through the Caregiving Trajectory: A Qualitative Interview Study on the Challenges Encountered by Primary Caregivers When Caring for Adolescents Living with HIV.Nursing reports (Pavia, Italy) · 2026Article
- Caregiver burden experienced by mothers of infants who are HIV exposed uninfected compared to infants HIV unexposed: A prospective cohort study in Worcester, South Africa.Journal of tropical pediatrics · 2026Article
- Affiliate Stigma Among Caregivers of Older People Living with HIV: A Descriptive Phenomenological Study.Behavioral sciences (Basel, Switzerland) · 2026Article
- Families caring for children living with HIV/AIDS: male care burden and poor health outcomes in a low socioeconomic context of Ghana.BMC public health · 2026Article
- Navigating Adversity: Psychosocial Transformation, Service Advocacy, and End-of-Life Perceptions Among Family Caregivers of PLWHA During Inpatient Treatment in Hunan, China.Patient preference and adherence · 2026Article
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- Mobile App-based Care Management Training to Improve Family Caregiver Competence in Caring for Children With HIV in Indonesia: A Quasi-experimental Study.Journal of preventive medicine and public health = Yebang Uihakhoe chi · 2025Article
- Providers perspectives on a team-based maternal health care delivery in Ghana: A qualitative study.PLOS global public health · 2025Article
- Challenges and coping strategies when caring for terminally ill persons with cancer: perspectives of family caregivers.BMC palliative care · 2024Article
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- Stigma by Association, Parenting Stress, and the Mental Health of Caregivers of Adolescents Living With HIV in Uganda.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2023Article
- Article
- Experiences of Caring for Adolescents Living with HIV (ALHIV): A Qualitative Interview with Caregivers.HIV/AIDS (Auckland, N.Z.) · 2022Article
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
With the advent of Anti-Retroviral Therapy, Human Immune Virus, and Acquire Immuno-Deficiency Syndrome is increasingly becoming a chronic disease as life expectancy among People Living With HIV/AIDS has increased. For Children Living With HIV/AIDS the role of the caregivers becomes essential as caregivers' decisions affect CLWH health. However, the experiences of these caregivers are often unnoticed while all interventions are directed at PLWH. This study aimed at exploring the experiences of caregivers of CLWH in some selected hospitals in northern Ghana. This study employed a qualitative descriptive phenomenological approach. Purposive sampling technique was used to recruit 9 participants from 3 public hospitals in the Tamale Metropolis of Ghana. Data was manually analyzed using the approach of Collaizi and the findings were presented in themes and sub-themes. We conducted individual face to face interviews in English and Dagbani from September to November 2019. These interviews were conducted at the convenience of the participants in hospitals and at their homes. They were introduced to the study while awaiting to take antivirals for their CLWH. Five themes emerged: changed family dynamics, discovery of diagnosis, reaction to diagnosis, disclosure, stigma and discrimination, and burden and challenges of care. Caregivers were severely impacted by caring for CLWH and traumatized by changed family dynamics which exposed them to many difficulties. Stigma was widely perpetrated by immediate family members and majority reacted badly to their children HIV-positive status with fear, shame, guilt and even suicidal ideation.
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