ArticleInternational journal of chronic obstructive pulmonary disease
Provision of Palliative Care in Patients with COPD: A Survey Among Pulmonologists and General Practitioners.
Article in International journal of chronic obstructive pulmonary disease. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 2 of them syntheses that pooled it.
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Who cites it
6 citing papers in PubMed, 2 syntheses or guidelines pooled it, 13 citations in OpenAlex.
- What helps or hinders the communication of poor prognosis between secondary and primary care? A systematic review with narrative synthesis.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- A Systematic Review of the Development and Implementation of Needs-Based Palliative Care Tools in Heart Failure and Chronic Respiratory Disease.Frontiers in cardiovascular medicine · 2022Pooled it
- Implementation of a palliative care intervention for patients with COPD - a mixed methods process evaluation of the COMPASSION study.BMC palliative care · 2022Article
- External Validation and User Experiences of the ProPal-COPD Tool to Identify the Palliative Phase in COPD.International journal of chronic obstructive pulmonary disease · 2022Article
- Perspectives of Respiratory Physicians toward Need and Integration of Palliative Care in Advanced Respiratory Diseases.Indian journal of palliative careArticle
- Underutilization of palliative care in advanced COPD and heart failure: associations, disparities, and the role of specialists.Therapeutic advances in respiratory diseaseObservational
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionPatients with advanced chronic obstructive pulmonary disease (COPD) experience significant symptom burden, leading to poor quality of life. Although guidelines recommend palliative care for these patients, this is not widely implemented and prevents them from receiving optimal care.
objectiveA national survey was performed to map the current content and organization of palliative care provision for patients with COPD by pulmonologists and general practitioners (GPs) in the Netherlands.
methodsWe developed a survey based on previous studies, guidelines and expert opinion. Dutch pulmonologists and GPs were invited to complete the survey between April and August 2019.
results130 pulmonologists (15.3%; covering 76% of pulmonology departments) and 305 GPs (28.6%) responded. Median numbers of patients with COPD in the palliative phase treated were respectively 20 and 1.5 per year. 43% of pulmonologists and 9% of GPs reported some formalized agreements regarding palliative care provision. Physicians most often determined the start of palliative care based on clinical expertise or the Surprise Question. 31% of pulmonologists stated that they often or always referred palliative patients with COPD to a specialist palliative care team; a quarter rarely referred. 79% of the respondents mentioned to often or always administer opioids to treat dyspnea. The topics least discussed were non-invasive ventilation and the patient's spiritual needs. The most critical barrier to starting a palliative care discussion was difficulty in predicting the disease course.
conclusionAlthough pulmonologists and GPs indicated to regularly address palliative care aspects, palliative care for patients with COPD remains unstructured and little formalized. However, our data revealed a high willingness to improve this care. Clear guidance and standardization of practice are needed to help providers decide when and how to initiate discussions, when to involve specialist palliative care and how to optimize information exchange between care settings.
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