Evidence map›Paper›PMID 33812880›Full record

ArticleUrology2021

Caregiver Burden Among Those Caring for Patients With Spina Bifida.

Michael J Sadighian, Isabelle E Allen, Kathryn Quanstrom, Benjamin N Breyer, Anne M Suskind, Nima Baradaran, Hillary L Copp, Lindsay A Hampson

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Urology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 15 citations in OpenAlex.

  1. Article
  2. Observational
  3. Review
  4. From birth to beyond: predicting incidence and timing of CSF diversion in postnatal MMC closure.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2026
    Article
  5. Article
  6. Article
  7. Observational
  8. Article
  9. Article
  10. Article
  11. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 1 country.

Michael J SadighianSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA.
Isabelle E AllenSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA.
Kathryn QuanstromSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA; University of Michigan, Ann Arbor, MI.
Benjamin N BreyerSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA.
Anne M SuskindSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA.
Nima BaradaranDepartment of Urology, Ohio State University, Columbus, OH.
Hillary L CoppSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA.
Lindsay A HampsonSchool of Medicine, Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA. Electronic address: lindsay.hampson@ucsf.edu.
University of California, San Francisco · USThe Ohio State University · US

Funding

UCSF KURe Career Development ProgramK12DK083021 · NIDDK · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI BASKIN, LAURENCE, CARROLL, PETER R · 2008 to 2017
$5.9M
NIDDK NIH HHS K12 DK083021
6 · The paper itself

Abstract

objective1) To identify baseline characteristics of caregivers of school-aged children with spina bifida; 2) To identify independent predictors of caregiver burden in this population. MATERIALS AND

methodsA survey was distributed via Facebook advertising to caregivers of patients with congenital genitourinary anomalies from May to September 2018. Eligible participants (n = 408) entailed English-speaking adults who are involved in the patient's care and attend ≥50% of their medical appointments. Caregiver burden was assessed using the Caregiver Burden Inventory (CBI), where higher scores indicate higher burden. CBI ≥24 indicates need for respite and CBI ≥36 indicates high risk of burnout. Bivariate analyses (t-tests and chi-square tests) were conducted using STATA software.

resultsOur analysis includes 408 caregivers caring for patients with spina bifida. In our study population, 59.3% of caregivers were in need of respite due to caregiver burden and 26.7% of caregivers were so burdened that they are at risk of burning out (CBI score ≥36). Bivariate analysis showed that caregiver gender and number of tasks performed by the caregiver were significantly associated with risk of burnout (CBI ≥ 36). Multivariable analysis of overall caregiver burden showed increased risk of burnout (CBI ≥ 36) among older caregivers, female caregivers, and those performing more caregiving tasks.

conclusionCaregiver burden is common among caregivers of patients with spina bifida, and further research is needed to identify strategies and resources for mitigating caregiver burden.

Indexed as

AdultCaregiver BurdenCross-Sectional StudiesFemaleHumansMaleMiddle AgedSpinal DysraphismBurnoutCaregiversCongenitalSpina BifidaTransitional careUrology

Identifiers

PMID33812880
PMCPMC8319054
OpenAlexW3139923696

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.