Evidence map›Paper›PMID 33801282›Full record

SynthesisInternational journal of environmental research and public health2021

Australian Experiences of Out-of-Pocket Costs and Financial Burden Following a Cancer Diagnosis: A Systematic Review.

Annie Bygrave, Kate Whittaker, Christine Paul, Elizabeth A Fradgley, Megan Varlow, Sanchia Aranda

Open access · goldAbstract readSystematic Review
In one paragraph

Synthesis in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
36citing papers in PubMed, 2 pooled it
14.5field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

36 citing papers in PubMed, 2 syntheses or guidelines pooled it, 64 citations in OpenAlex.

  1. Pooled it
  2. Financial toxicity experienced by patients with breast cancer-related lymphedema: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Pooled it
  3. The financial burden of cancer: A longitudinal analysis of out-of-pocket healthcare costs in Australia (2009-2021).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  4. Article
  5. Article
  6. Cancer survivor preferences for breast cancer follow-up care: a discrete choice experiment.Journal of cancer survivorship : research and practice · 2026
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. The impact of financial toxicity on quality of life for survivors of primary brain tumour.Journal of cancer survivorship : research and practice · 2025
    Article
  13. Article
  14. Dietitians' practices and perspectives of the delivery of nutritional care to cancer survivors in the primary care setting.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  15. "It was time I could have spent better"-the barriers, enablers, and recommendations for improving access to financial aid when a child has cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Annie BygraveCancer Council Australia, Sydney, NSW 2000, Australia.ORCID 0000-0001-5053-9459
Kate WhittakerCancer Council Australia, Sydney, NSW 2000, Australia.
Christine PaulSchool of Medicine and Public Health, University of Newcastle, Callaghan, NSW 2308, Australia.
Elizabeth A FradgleySchool of Medicine and Public Health, University of Newcastle, Callaghan, NSW 2308, Australia.ORCID 0000-0003-3535-2885
Megan VarlowCancer Council Australia, Sydney, NSW 2000, Australia.
Sanchia ArandaCancer Council Australia, Sydney, NSW 2000, Australia.
Cancer Council Australia · AUHunter Cancer Research Alliance · AUThe University of Melbourne · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

(1) Background: This systematic review was conducted to identify cancer patient experiences, and the impact of out-of-pocket costs and financial burden in Australia. (2) Methods: A systematic review, following the Preferring Reporting Items for Systematic Reviews and Meta-Analyses, was conducted. Cumulative Index of Nursing and Allied Health Literature and PubMed were searched. The primary outcome was financial burden among cancer patients and their families in Australia. The secondary outcome was out-of-pocket costs associated with cancer care and treatment within the population sample, and the impact of financial burden. (3) Results: Nineteen studies were included, covering more than 70,000 Australians affected by cancer. Out-of-pocket costs varied by cancer type and ranged from an average of AUD 977 for breast cancer and lymphoedema patients to AUD 11,077 for prostate cancer patients. Younger aged patients (≤65 years), Aboriginal and Torres Strait Islander people, people in rural and/or remote areas, households with low income, those who were unemployed and people with private health insurance were at increased risk of experiencing out-of-pocket costs, financial burden or a combination of both. (4) Conclusions: Australians diagnosed with cancer frequently experience financial burden, and the health and financial consequences are significant. Focusing efforts on the costs of care and options about where to have care within the context of informed decisions about cancer care is necessary.

Indexed as

Health ExpendituresNeoplasmsAgedAustraliaAustralian Aboriginal and Torres Strait Islander PeoplesHumansMalePopulation GroupsRural PopulationAustraliacancer patientfinancial toxicitysystematic review

Identifiers

PMID33801282
PMCPMC7967550
OpenAlexW3133965252

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.