ArticleJournal of multimorbidity and comorbidity
Engagement of older adults with multimorbidity as patient research partners: Lessons from a patient-oriented research program.
Article in Journal of multimorbidity and comorbidity. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient engagement in multimorbidity: a systematic review of patient-reported outcome measures.Frontiers in psychology · 2024Pooled it
- The stroke transitional care intervention for older adults with stroke and multimorbidity: a multisite pragmatic randomized controlled trial.BMC geriatrics · 2023Trial
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Research in Partnership With Older People-Involvement in Conducting and Analysing Focus Groups.Health expectations : an international journal of public participation in health care and health policy · 2025Observational
- Community case study of patient and clinician early engagement in research on multiple chronic conditions using an implementation guide.Frontiers in medicine · 2025Article
- Establishing patient partners' roles on research teams: a scoping review.Research involvement and engagement · 2024Article
- Article
- Shaping understandings through reflexive practice: Learnings from participatory research on aging with multiple sclerosis.Research involvement and engagement · 2024Article
- Co-designing a participatory evaluation of older adult partner engagement in the mcmaster collaborative for health and aging.Research involvement and engagement · 2024Article
- Determining the destination: a co-designed chronic advanced cancer rehabilitation conceptual framework for engagement of individuals with lived experience in rehabilitation research.Research involvement and engagement · 2024Article
- Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end-of-life.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Why are older adults living with the complexity of multiple long-term conditions, frailty and a recent deterioration in health under-served by research? A narrative synthesis review of the literature.Journal of frailty, sarcopenia and falls · 2023Review
- Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation.Research involvement and engagement · 2023Article
- Including the voice of older people in the co-design of perioperative pathways of care.Future healthcare journal · 2023Article
- Engagement of people with lived experience of dementia advisory group and cross-cutting program: reflections on the first year.Research involvement and engagement · 2022Article
- The impacts of partnering with cancer patients in palliative care research: a systematic review and meta-synthesis.Palliative care and social practice · 2022Review
- A protocol for the evaluation of the process and impact of embedding formal and experiential Public and Patient Involvement training in a structured PhD programme.Journal of multimorbidity and comorbidityArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient "engagement" in health research broadly refers to including people with lived experience in the research process. Although previous reviews have systematically summarized approaches to engaging older adults and their caregivers in health research, there is currently little guidance on how to meaningfully engage older adults with multimorbidity as research partners.
objectivesThis paper describes the lessons learned from a patient-oriented research program, the Aging, Community and Health Research Unit (ACHRU), on how to engage older adults with multimorbidity as research partners. Over the past 7-years, over 40 older adults from across Canada have been involved in 17 ACHRU projects as patient research partners.
methodsWe developed this list of lessons learned through iterative consensus building with ACHRU researchers and patient partners. We then met to collectively identify and summarize the reported successes, challenges and lessons learned from the experience of engaging older adults with multimorbidity as research partners.
resultsACHRU researchers reported engaging older adult partners across many phases of the research process. Five challenges and lessons learned were identified: 1) actively finding patient partners who reflect the diversity of older adults with multimorbidity, 2) developing strong working relationships with patient partners, 3) providing education and support for both patient partners and researchers, 4) using flexible approaches for engaging patients, and 5) securing adequate resources to enable meaningful engagement.
conclusionThe lessons learned through this work may provide guidance to researchers on how to facilitate meaningful engagement of this vulnerable and understudied subgroup in the patient engagement literature.
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