Evidence map›Paper›PMID 33794713›Full record

SynthesisPalliative medicine2021

Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis.

Rachel McCauley, Regina McQuillan, Karen Ryan, Geraldine Foley

Abstract readSystematic Review
In one paragraph

Synthesis in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
34citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

34 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Trial
  4. Trial
  5. Trial
  6. Article
  7. Article
  8. Review
  9. Review
  10. Article
  11. Observational
  12. Observational
  13. Article
  14. Article
  15. Article
  16. Article
  17. Determinants of quality of life decrease in family caregivers of care-dependent patients: a longitudinal study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  18. Moral distress among family caregivers of people with cancer in palliative care: A qualitative study.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025
    Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Rachel McCauleyDiscipline of Occupational Therapy, School of Medicine, Trinity College Dublin, Dublin, Ireland.ORCID 0000-0002-5337-2794
Regina McQuillanSt. Francis Hospice Dublin, Dublin, Ireland.
Karen RyanUniversity College Dublin, Dublin, Ireland.
Geraldine FoleyDiscipline of Occupational Therapy, School of Medicine, Trinity College Dublin, Dublin, Ireland.ORCID 0000-0001-7952-9246

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatients in palliative care are usually conceptualised as recipients of support from family caregivers. Family caregivers in palliative care are typically defined as providers of support to patients. Little is known about reciprocal dimensions of support provision between patients and family caregivers in palliative care.

aimTo identify processes of mutual support between patients and family caregivers in palliative care and factors that contribute to or obstruct mutual support between patients and family caregivers in palliative care.

designSystematic review and narrative synthesis of original peer-reviewed research published between January 2000 and March 2020. DATA SOURCES: Medline, CINAHL, Embase, AMED, PsycINFO and PsycARTICLES.

resultsAfter full-text screening, 10 studies were included. We identified that patients and family caregivers in palliative care can support one another by mutually acknowledging the challenges they face, by remaining positive for one another and by jointly adapting to their changing roles. However, patients and family caregivers may not routinely communicate their distress to each other or reciprocate in distress disclosure. A lack of mutual disclosure pertaining to distress can result in conflict between patients and family caregivers.

conclusionsFew studies have focused in whole or in part, on reciprocal dimensions of support provision between patients with advancing non-curable conditions, and their family caregivers in palliative care. Further research is required to identify key domains of mutual support between patients and family caregivers in palliative care.

Indexed as

CaregiversHospice and Palliative Care NursingFamilyHumansNarrationPalliative Carecaregiversmutual supportpalliative carepatientsSystematic review

Identifiers

PMID33794713
PMCPMC8114453

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.