Evidence map›Paper›PMID 33794302›Full record

ArticleJournal of pain and symptom management2021

Global Experiences of Pediatric Palliative Care Teams During the First 6 Months of the SARS-CoV-2 Pandemic.

Michael J McNeil, Erica C Kaye, Yuvanesh Vedaraju, Justin N Baker, Meenakshi Devidas, Julia Downing, Dylan Graetz, Radhikesh Ranadive, Abby R Rosenberg, Lori Wiener and 1 more

Open access · hybridAbstract read
In one paragraph

Article in Journal of pain and symptom management, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
2.6field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 13 citations in OpenAlex.

  1. Review
  2. Article
  3. Paediatrics & child health · 2022
    Article
  4. COVID-19: Impact on Pediatric Palliative Care.Journal of pain and symptom management · 2022
    Article
  5. Article
  6. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 5 institutions in 2 countries.

Michael J McNeilSt. Jude Children's Research Hospital, Department of Global Pediatric Medicine, Memphis, Tennesse, USA; St. Jude Children's Research Hospital, Division of Quality and Life and Palliative Care, Department of Oncology, Memphis, Tennesse, USA. Electronic address: michael.mcneil@stjude.org.
Erica C KayeSt. Jude Children's Research Hospital, Division of Quality and Life and Palliative Care, Department of Oncology, Memphis, Tennesse, USA.
Yuvanesh VedarajuSt. Jude Children's Research Hospital, Department of Global Pediatric Medicine, Memphis, Tennesse, USA.
Justin N BakerSt. Jude Children's Research Hospital, Division of Quality and Life and Palliative Care, Department of Oncology, Memphis, Tennesse, USA.
Meenakshi DevidasSt. Jude Children's Research Hospital, Department of Global Pediatric Medicine, Memphis, Tennesse, USA.
Julia DowningInternational Children's Palliative Care Network, Assagay, South Africa.
Dylan GraetzSt. Jude Children's Research Hospital, Department of Global Pediatric Medicine, Memphis, Tennesse, USA.
Radhikesh RanadiveSt. Jude Children's Research Hospital, Department of Global Pediatric Medicine, Memphis, Tennesse, USA.
Abby R RosenbergDivision of Hematology/Oncology, Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA; Palliative Care and Resilience Lab, Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, Washington, USA.
Lori WienerNational Institutes of Health, National Cancer Institute, Center for Cancer Research, Bethesda, Maryland, USA.
Meaghann S WeaverNational Center for Ethics in Healthcare, Washington, District of Columbia, USA; Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, Nebraska, USA.
St. Jude Children's Research Hospital · USEthics and Public Policy Center · USNational Institutes of Health · USRight to Care · ZAUniversity of Washington · US

Funding

Graft-Versus-Host Disease Symptom Management-CuresZIABC011874 · NCI · DIVISION OF BASIC SCIENCES - NCI · PI WIENER, LORI · 2020 to 2024
$1.7M
6 · The paper itself

Abstract

contextThe coronavirus pandemic (COVID-19) has profoundly impacted the provision of pediatric palliative care (PPC) interventions including goals of care discussions, symptom management, and end-of-life care.

objectiveGaining understanding of the professional and personal experiences of PPC providers on a global scale during COVID-19 is essential to improve clinical practices in an ongoing pandemic.

methodsThe Palliative Assessment of Needed DEvelopments & Modifications In the Era of Coronavirus Survey-Global survey was designed and distributed to assess changes in PPC practices resulting from COVID-19. Quantitative and qualitative data were captured through the survey.

resultsOne hundred and fifty-six providers were included in the final analysis with 59 countries and six continents represented (31% from lower- or lower middle-income countries). Nearly half of PPC providers (40%) reported programmatic economic insecurity or employment loss. Use of technology influenced communication processes for nearly all participants (91%), yet most PPC providers (72%) reported receiving no formal training in use of technological interfaces. Respondents described distress around challenges in provision of comfort at the end of life and witnessing patients' pain, fear, and isolation.

conclusionsPPC clinicians from around the world experienced challenges related to COVID-19. Technology was perceived as both helpful and a hinderance to high quality communication. The pandemic's financial impact translated into concerns about programmatic sustainability and job insecurity. Opportunities exist to apply these important experiential lessons learned to improve and sustain care for future patients, families, and interdisciplinary teams. ARTICLE SUMMARY: This original article describes the impact of the COVID-19 pandemic on pediatric palliative care clinicians from 59 countries including financial losses, use of virtual communication modalities, and the respondents' distress in provision of comfort at the end of life.

Indexed as

COVID-19Hospice CareChildHumansPalliative CarePandemicsSARS-CoV-2COVID-19globalPediatric palliative care

Identifiers

PMID33794302
PMCPMC8007190
OpenAlexW3148780641

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.