Evidence map›Paper›PMID 33792428›Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2021

A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers.

Bruce Leff, Orla C Sheehan, Krista L Harrison, Ashley Eaton England, Alex Mickler, Pragyashree Sharma Basyal, Sarah K Garrigues, Mattan Schuchman, Carla Perissinotto, Sarah B Garrett and 1 more

Open access · greenAbstract read
In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.5field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 7 citations in OpenAlex.

  1. Visualizing Veterans' Care at Home: Understanding the Structure, Function, and Adequacy of Caregiving Networks.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 4 institutions in 1 country.

Bruce LeffJohns Hopkins University School of Medicine, Baltimore, MD, USA.ORCID 0000-0003-1714-7458
Orla C SheehanJohns Hopkins University School of Medicine, Baltimore, MD, USA.
Krista L HarrisonUniversity of California, San Francisco, USA.
Ashley Eaton EnglandCentral Michigan University, Mount Pleasant, USA.ORCID 0000-0001-5067-0940
Alex MicklerJohns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.ORCID 0000-0003-4800-3465
Pragyashree Sharma BasyalJohns Hopkins University School of Medicine, Baltimore, MD, USA.
Sarah K GarriguesUniversity of California, San Francisco, USA.
Mattan SchuchmanJohns Hopkins University School of Medicine, Baltimore, MD, USA.
Carla PerissinottoUniversity of California, San Francisco, USA.
Sarah B GarrettUniversity of California, San Francisco, USA.
Christine S RitchieHarvard Medical School, Boston, MA, USA.
Johns Hopkins University · USUniversity of California, San Francisco · USCentral Michigan University · USHarvard University · US

Funding

Palliative Care for People Living at Home with Advancing Dementia and Their CaregiversK01AG059831 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI HARRISON, KRISTA LYN · 2019 to 2023
$720k
AHRQ HHS T32 HS022241NIA NIH HHS K01 AG059831NIA NIH HHS L30 AG060590
6 · The paper itself

Abstract

Homebound older adults have not had a voice in establishing a research agenda relevant to their needs and perspectives. We engaged homebound older adults receiving home-based primary care and caregivers to serve as stakeholder advisors to develop a patient- and caregiver-centered research agenda for home-based care. Over 9 months, we facilitated eight tablet-enabled videoconference meetings. We oriented advisors to patient-centered outcome research and research question development. Advisors developed and prioritized a list of 14 research domains and 127 associated research questions. The top three prioritized research domains in descending rank order (number of associated research questions) were out-of-pocket costs of caregiving (10), access to home-based care and related policy issues (19), and relationship with doctors (15). This research agenda can guide researchers' efforts to focus on areas of importance to the ultimate end users of their research.

Indexed as

Homebound PersonsHome Care ServicesAgedCaregiversHumansPrimary Health Carehealth outcomeshome-based primary carehome carepatient-centered outcomes researchperson-centered careresearch agenda

Identifiers

PMID33792428
PMCPMC8604613
OpenAlexW3147228296

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.