Evidence map›Paper›PMID 33790424›Full record

ArticleSpinal cord2021

Inside the lived perspective of life after spinal cord injury: a qualitative study of the desire to live and not live, including with assisted dying.

Natalja Tchajkova, Karen Ethans, Stephen D Smith

Open access · bronzeAbstract read
PubMed Publisher
In one paragraph

Article in Spinal cord, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.

  1. Pooled it
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 1 country.

Natalja TchajkovaSection of Physical Medicine and Rehabilitation, Department of Medicine, University of Manitoba, Winnipeg, Canada. Natalja.Tchajkova@alumni.ubc.ca.ORCID http://orcid.org/0000-0001-8887-034X
Karen EthansSection of Physical Medicine and Rehabilitation, Department of Medicine, University of Manitoba, Winnipeg, Canada.
Stephen D SmithUniversity of Winnipeg Psychology Department, Winnipeg, Canada.
University of British Columbia Hospital · CAUniversity of Manitoba · CAUniversity of Winnipeg · CA

Funding

Rick Hansen Institute (Institut Rick Hansen) 2012-31
6 · The paper itself

Abstract

STUDY

designQualitative.

objectivesThe objective of this study was to examine whether individuals with a SCI would have considered Medical-Assistance-in-Dying (MAiD) following their SCI and whether these individuals felt they would have been able to make an informed decision about this potentially permanent option early in their experience.

settingManitoba, Canada.

methodsParticipants with varying neurological levels of SCI and classification were included. The time since SCI ranged from <6 months to >50 years. A focus group of five individuals was conducted first to calibrate questions. Twenty-three participants were then individually interviewed. Participants' responses were transcribed and coded into themes.

resultsHalf of the participants reported having suicidal ideation within the first 2 years of experiencing a SCI. However, no participants thought that they would have been able to make an informed decision about MAiD during this time. Most participants reported that they were able to adapt and reframe their lives to alter their views. There was higher agreement that MAiD should be available for individuals who had experienced a reframed, informed view.

conclusionThis study indicates that people with SCI do not feel that informed decision making about ending their life can be made early after SCI despite high levels of reported suicidal ideation in that early time frame. A reframing process helps to facilitate informed decisions about living with a SCI. The reframing process is correlated with opportunities of rehabilitation, peer mentor support, and re-integration into the community.

Indexed as

Spinal Cord InjuriesSuicide, AssistedFocus GroupsHumansMentorsQualitative Research

Identifiers

PMID33790424
OpenAlexW3139882205

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.