ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Involving an individual with lived-experience in a co-analysis of qualitative data.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic review of participatory research involving forensic mental health patients.BMC psychiatry · 2026Pooled it
- Pooled it
- Bridging Lived and Expert Experience: A Qualitative Study Exploring Lived-Experience Experts' and Researchers' Experiences of Public Engagement in Cancer Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Embedding Patient and Public Engagement in a Cancer Project: Protocol for a Qualitative Study.JMIR research protocols · 2026Article
- Communicating unexpected news in the fetal medicine setting: experiences of pregnant women with mental health conditions (The UNDERSTAND study).BMC pregnancy and childbirth · 2026Article
- A qualitative study of lived experiences of underrepresented electrical workers using creative non-fiction.PloS one · 2026Article
- How individuals with psychosis develop and maintain resilience to suicidal experiences through psychological therapy: a qualitative study.BMC psychiatry · 2024Article
- Home self-management of type 2 diabetes with diabetes technologies in northern France: a focused ethnographic study protocol.BMJ open · 2024Article
- Evaluation of Public Involvement in Doctoral Research Using a Four-Dimensional Theoretical Framework.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- 'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom-heard communities in big data research.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- 'Learning and growing together': exploring consumer partnerships in a PhD, an ethnographic study.Research involvement and engagement · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- "Because of COVID…": The impacts of COVID-19 on First Nation people accessing the HIV cascade of care in Manitoba, Canada.PloS one · 2023Article
- Leading wellness in healthcare: A qualitative study of leadership practices for wellness in hospital settings.PloS one · 2023Article
- Exploring how to improve the involvement of Polish and South Asian communities around big data research. A qualitative study using COM-B model.International journal of population data science · 2023Article
- A Narrative Inquiry into the Practices of Healthcare Workers' Wellness Program: The SEED Experience in New South Wales, Australia.International journal of environmental research and public health · 2022Article
- Personal factors understood through the Ecological-Enactive Model of Disability and implications for rehabilitation research.Frontiers in rehabilitation sciences · 2022Article
- Male prisoners' experiences of taking part in research about suicide and violence: a mixed methods study.Research involvement and engagement · 2021Article
- Involving an individual with lived-experience in a co-analysis of qualitative data.Health expectations : an international journal of public participation in health care and health policy · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundPeople with lived-experience of the phenomenon under investigation are seldom involved in the analysis of qualitative data, and there exists little guidance for those wishing to involve contributors at this stage of research.
aimsTo critically reflect on the process of involving people with lived-experience in a thematic analysis and to offer direction to other researchers.
methodsAn individual with lived-experience of residing in prison contributed to a co-analysis of qualitative data using thematic analysis. This paper reports on involvement at each stage of a thematic analysis and follows an established reporting checklist.
resultsA number of challenges and benefits were encountered in the process of co-analysing the data. These are discussed in relation to previous research and how to overcome the challenges encountered.
conclusionsThe paper concludes by giving recommendations and guidance for future researchers wishing to involve people with lived-experience in qualitative data analysis.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.