Evidence map›Paper›PMID 33788075›Full record

ArticleJournal of autism and developmental disorders2022

A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.

Kiah Evans, Larah van der Meer, Matthew J F Eggleston, Lauren J Taylor, Hiran Thabrew, Hannah Waddington, Andrew J O Whitehouse

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Kiah EvansTelethon Kids Institute, University of Western Australia, PO Box 855, Perth, WA, 6872, Australia. kiah.evans@telethonkids.org.au.ORCID http://orcid.org/0000-0003-2850-7674
Larah van der MeerCooperative Research Centre for Living with Autism (Autism CRC), Brisbane, QLD, Australia.
Matthew J F EgglestonMental Health Division, Canterbury District Health Board, Christchurch, New Zealand.
Lauren J TaylorSchool of Psychological Science, University of Western Australia, Perth, WA, Australia.
Hiran ThabrewDepartment of Psychological Medicine, University of Auckland, Auckland, New Zealand.
Hannah WaddingtonSchool of Education, Victoria University of Wellington, Wellington, New Zealand.
Andrew J O WhitehouseTelethon Kids Institute, University of Western Australia, PO Box 855, Perth, WA, 6872, Australia.

Funding

Cooperative Research Centre for Living with Autism 1.058RU
6 · The paper itself

Abstract

The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand.

Indexed as

Autism Spectrum DisorderAutistic DisorderAdolescentAdultHumansNew ZealandPersonal SatisfactionSurveys and QuestionnairesAutism Spectrum DisorderDiagnosisExperienceIdentificationSupport

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.