ArticleResearch involvement and engagement2021
Exploring community engaged research experiences and preferences: a multi-level qualitative investigation.
Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 77 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
77 citing papers in PubMed, 1 synthesis or guideline pooled it, 112 citations in OpenAlex.
- Community-Based Culturally Tailored Education Programs for Black Communities with Cardiovascular Disease, Diabetes, Hypertension, and Stroke: Systematic Review Findings.Journal of racial and ethnic health disparities · 2023Pooled it
- Impact of health literacy and primary language on the decision to pursue trial of labor after prior cesarean delivery.BMC pregnancy and childbirth · 2025Trial
- Supported biopsychosocial self-management for back-related leg pain: a randomized feasibility study integrating a whole person perspective.Chiropractic & manual therapies · 2025Trial
- Women's musculoskeletal health: insights from the 2024 National Academies of Sciences, Engineering, and Medicine report on chronic conditions.Journal of bone and mineral research : the official journal of the American Society for Bone and Mineral Research · 2026Review
- Cancer early detection research priorities in some underrepresented communities: a commentary of the learnings from a community priority setting project.Research involvement and engagement · 2026Article
- Community-engaged research in HIV implementation science: a cross-sectional assessment of meaningful engagement among community and academic recipients of 2021 and 2022 'ending the HIV epidemic' supplement awards.Implementation science communications · 2026Article
- Multiracial individuals' perspectives on participating in genetics research.Journal of community genetics · 2026Article
- Experiences and Perceptions Within a Co-Created Drone Transport Initiative With Rural First Nation and Non-First Nation Communities: Semistructured Interview Study.Journal of participatory medicine · 2026Article
- Community and stakeholder engagement in national priority setting and participatory research for HIV, Tuberculosis, and Malaria programs in Nepal.Research involvement and engagement · 2026Article
- Setting the rules of engagement: a qualitative study of challenges and enablers of engaged research in a South African emergency care system.Research involvement and engagement · 2026Article
- Co-Designing a Cultural Informed Framework to Promote the Well-Being of Black Canadian Parents With Preterm Infants: A Qualitative Study Protocol.Journal of advanced nursing · 2026Article
- Cultivating Authentic Partnership: Cooperative Development of a Toolkit to Mitigate Group Harm in Biorepository-Enabled Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Who is the emergency care community? A qualitative exploration of stakeholder roles and relationships in engaged research within a South African provincial emergency care system.African journal of emergency medicine : Revue africaine de la medecine d'urgence · 2026Article
- Consumer Engagement in Chronic Conditions Research: An Integrated Framework Informed by Recognition Theory.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Article
- New directions from the COMPASS study: A qualitative review of participation and communication in rural kidney health research.BMC nephrology · 2026Article
- Evaluating the Alliance against Violence and Adversity Online Training Program: an online curriculum to support children, women, and gender-diverse people.Frontiers in public health · 2026Article
- Applying Community Engagement Methods to Facilitate Global Co‑Learning among Indigenous Communities.Annals of global health · 2026Article
- Addressing a gap in community-engaged research: reporting results of congregations' implementation capacity assessment to research participants.Frontiers in public health · 2026Article
- Community co-design of research intervention materials to reduce cervical cancer disparities in Appalachia.PEC innovation · 2025Article
17 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundCommunity engagement may make research more relevant, translatable, and sustainable, hence improving the possibility of reducing health disparities. The purpose of this study was to explore strategies for community engagement adopted by research teams and identify areas for enhancing engagement in future community engaged research.
methodsThe Community Engagement Program of the Johns Hopkins Institute for Clinical and Translational Research hosted a forum to engage researchers and community partners in group discussion to reflect on their diverse past and current experiences in planning, implementing, and evaluating community engagement in health research. A total of 50 researchers, research staff, and community partners participated in five concurrent semi-structured group interviews and a whole group wrap-up session. Group interviews were audiotaped, transcribed verbatim, and analyzed using content analysis.
resultsFour themes with eight subthemes were identified. Main themes included: Community engagement is an ongoing and iterative process; Community partner roles must be well-defined and clearly communicated; Mutual trust and transparency are central to community engagement; and Measuring community outcomes is an evolving area. Relevant subthemes were: engaging community partners in various stages of research; mission-driven vs. "checking the box"; breadth and depth of engagement; roles of community partner; recruitment and selection of community partners; building trust; clear communication for transparency; and conflict in community engaged research.
conclusionThe findings highlight the benefits and challenges of community engaged research. Enhanced capacity building for community engagement, including training and communication tools for both community and researcher partners, are needed.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.