ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2022
Care for the Cancer Caregiver: a Qualitative Study of Facilitators and Barriers to Caregiver Integration and Support.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 30 citations in OpenAlex.
- Experiences of informal caregivers supporting individuals with upper gastrointestinal cancers: a systematic review.BMC health services research · 2024Pooled it
- Trial
- Caregivers as essential members of healthcare teams: lessons learned from enforcement of the "no visitors" policy during the COVID-19 pandemic in Ontario, Canada.BMC health services research · 2026Article
- It's all about the relationship: The caregiver experience of supporting a person with advanced cancer going through an LSD microdosing trial.Palliative & supportive care · 2026Article
- Supporting Black breast cancer survivors and their informal caregivers: a qualitative dyadic analysis of intervention preferences.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2026Article
- Article
- A Qualitative Study Examining Caregivers' Perspectives on Healthcare System Barriers and Facilitators to Foregut Cancer Care.The Journal of surgical research · 2025Article
- Improving the oncology care pathway through the experience of patients and their caregiver.BMC palliative care · 2025Article
- Defining Family-Centered Cancer Care: A Group Concept Mapping Study.Psycho-oncology · 2025Article
- Development of a Mobile App to Support Head and Neck Cancer Caregiving: Mixed Methods Study.JMIR cancer · 2025Article
- Caregiver burden in family caregivers of individuals with cancer in Iran: an analytical cross-sectional study.Journal of health, population, and nutrition · 2025Article
- Aiming for survival: a qualitative single case study of support for family members across the care process in outpatient colorectal cancer care.BMC cancer · 2025Article
- Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- Family members' conceptions of their supportive care needs across the colorectal cancer trajectory - A phenomenographic study.Journal of advanced nursing · 2025Article
- It is time to address fear of cancer recurrence in family caregivers: protocol for the feasibility and acceptability of a randomized pilot study of the online version of the Family Caregiver-Fear Of Recurrence Therapy (FC-FORT).Pilot and feasibility studies · 2024Article
- Symptom burden and quality of life among patient and family caregiver dyads in advanced cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- So what I'm stressed? A qualitative study examininga caregivers' reactions to emerging biomarkers of stress.Brain, behavior, & immunity - health · 2024Article
- Caregivers' demands: caring atmosphere expected by cancer patients' caregivers-a qualitative content analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Behind the scenes of caregiving in patients with advanced cancer: A qualitative study on family caregivers.Asia-Pacific journal of oncology nursing · 2024Article
- Measuring Team Functioning During the COVID-19 Pandemic: Perspectives of Cancer Care Team Members.Journal of multidisciplinary healthcare · 2024Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
Informal family caregivers are critically important for patient care throughout the cancer care trajectory. Family-centered care, which seeks to integrate family members as experts, is a framework that values partnerships with family members and can benefit both the physical and psychosocial health of patients. However, little standardization or system-level implementation of family-centered care models to integrate and support family caregivers have emerged in adult oncology care settings in the USA. To better understand potential barriers and facilitators to the integration and support of family caregivers in cancer care settings, we conducted semi-structured interviews with informal family caregivers (n = 12) and members of the cancer center leadership team and health care providers (n = 11) at an NCI-designated Comprehensive Cancer Center. We frame our results using the social ecological model and identified facilitators and barriers at the individual, interpersonal, and system level. While caregivers and team members were able to identify facilitators and barriers at the individual (i.e., caregivers are motivated to learn, but overwhelmed and focused only on the patient) and interpersonal levels (i.e., relationships are a valuable resource, but communication is sometimes challenging), team members were more likely to identify system-level barriers (i.e., constraints within the larger healthcare structure). To implement family-centered care in cancer settings, it is incumbent on the healthcare system to pursue standardization of communication, programs that facilitate family integration and support, and advocate for policy change. Barriers must be addressed at multiple levels to provide inclusive and supportive environments for all patients and their families.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.