Evidence map›Paper›PMID 33778978›Full record

ArticleScandinavian journal of caring sciences2022

Caring for patients with end-stage renal disease during COVID-19 lockdown: What (additional) challenges to family caregivers?

Helena Sousa, Roberta Frontini, Oscar Ribeiro, Constança Paúl, Elísio Costa, Leonilde Amado, Vasco Miranda, Fernando Ribeiro, Daniela Figueiredo

Open access · greenAbstract read
In one paragraph

Article in Scandinavian journal of caring sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
3.4field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it, 25 citations in OpenAlex.

  1. The Impact of the COVID-19 Pandemic on Patients With CKD: Systematic Review of Qualitative Studies.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2023
    Pooled it
  2. The Experiences of Informal Carers during the COVID-19 Pandemic: A Qualitative Systematic Review.International journal of environmental research and public health · 2022
    Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 2 countries.

Helena SousaCenter for Health Technology and Services Research (CINTESIS.UA), School of Health Sciences, University of Aveiro (Campus Universitário de Santiago), Aveiro, Portugal.
Roberta FrontiniCenter for Innovative Care and Health Technology (ciTechcare), Polytechnic of Leiria, Leiria, Portugal.
Oscar RibeiroCenter for Health Technology and Services Research (CINTESIS.UA), Department of Education and Psychology, University of Aveiro (Campus Universitário de Santiago), Aveiro, Portugal.
Constança PaúlCenter for Health Technology and Services Research (CINTESIS), Institute of Biomedical Sciences Abel Salazar, University of Porto (Rua Jorge de Viterbo Ferreira 228), Porto, Portugal.
Elísio CostaResearch Unit on Applied Molecular Biosciences (UCIBIO - REQUIMTE), Faculty of Pharmacy, University of Porto (Rua Jorge de Viterbo Ferreira 228), Porto, Portugal.
Leonilde AmadoNephroCare, Maia, Portugal.
Vasco MirandaNephroCare, Maia, Portugal.
Fernando RibeiroInstitute for Biomedicine (iBiMED), School of Health Sciences, University of Aveiro (Campus Universitário de Santiago), Aveiro, Portugal.
Daniela FigueiredoCenter for Health Technology and Services Research (CINTESIS.UA), School of Health Sciences, University of Aveiro (Campus Universitário de Santiago), Aveiro, Portugal.ORCID https://orcid.org/0000-0002-3160-7871
Centre for Health Technology and Services Research · PTNephroCare · ESUniversidade do Porto · PTInstituto Politécnico de Leiria · PTUniversity of Aveiro · PT

Funding

This work was financially supported by the project POCI-01-0145- FEDER-030228, funded by FEDER, through COMPETE2020 - Programa Operacional Competitividade e Internacionalização (POCI), and by national funds (OE), through FCT/MCTES. It was also supported by National Funds through Fundação para a Ciência e a Tecnologia (FCT) within the CINTESIS R&D Unit (reference UIDB/4255/2020)
6 · The paper itself

Abstract

introductionCaring for a patient with end-stage renal disease undergoing in-centre haemodialysis can be a stressful experience, likely to involve significant burden. Within the context of the new coronavirus pandemic, these patients are highly vulnerable to infection by COVID-19, which might increase the care demands and burden of family caregivers.

aimThis study aimed to explore the subjective experiences of family caregivers of non-COVID-19 patients with end-stage renal disease undergoing in-centre haemodialysis during the COVID-19 lockdown. STUDY

designA qualitative study was performed with a purposive sample.

methodsSemi-structured telephone interviews were conducted with 19 family caregivers (50.7 ± 14 years old) of patients undergoing in-centre haemodialysis in April 2020.

findingsFour major themes were identified: (1) emotional distress; (2) changes in caregiving responsibilities; (3) educational and supportive needs; and (4) coping strategies to deal with the outbreak and with the lockdown. DISCUSSION: The findings suggest that family caregivers of patients undergoing in-centre haemodialysis have to manage several additional care responsibilities due to COVID-19 lockdown. The dialysis team should consider the development of educational and supportive interventions to meet family caregivers' needs, mitigate emotional distress, fears and concerns, and prevent caregiver burden during the COVID-19 pandemic.

Indexed as

COVID-19Kidney Failure, ChronicAdultCaregiversCommunicable Disease ControlFamilyHumansMiddle AgedPandemicsPatient CareQualitative ResearchSARS-CoV-2coronavirusCOVID-19end-stage renal diseasefamily caregivershaemodialysisqualitative study

Identifiers

PMID33778978
PMCPMC8251279
OpenAlexW3145209816

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.