Evidence map›Paper›PMID 33775641›Full record

ArticleJournal of obstetric, gynecologic, and neonatal nursing : JOGNN2021

Women's Experiences With Palliative Care During Pregnancy.

Andrea Crawford, Amelia Hopkin, Mary Rindler, Erin Johnson, Lauren Clark, Erin Rothwell

Abstract read
In one paragraph

Article in Journal of obstetric, gynecologic, and neonatal nursing : JOGNN, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Andrea Crawford
Amelia Hopkin
Mary Rindler
Erin Johnson
Lauren Clark
Erin Rothwell

Funding

Utah Center of Excellence in ELSI Research: UCEERRM1HG009037 · NHGRI · UNIVERSITY OF UTAH · PI ROTHWELL, ERIN, TABERY, JAMES · 2016 to 2024
$8.0M
NHGRI NIH HHS RM1 HG009037
6 · The paper itself

Abstract

objectiveTo explore the experiences of women who received life-limiting fetal diagnoses during pregnancy and support from a perinatal palliative care program.

designDescriptive qualitative.

settingThe perinatal palliative care program is part of a not-for-profit system of 24 hospitals serving the U.S. Intermountain West region.

participantsA convenience sample of 12 women who experienced pregnancies with life-limiting fetal diagnoses and received care from a perinatal palliative care program.

methodsWomen chose to participate from mailed invitations or responded to a post on private social media and then completed semistructured interviews about their experiences surrounding the fetal diagnoses and support from a perinatal palliative care program. Interviews were approximately 40 minutes in length and were conducted over the phone, recorded, and then transcribed. We performed content analysis by coding, forming categories of similar coded data, and constructing themes by recontextualizing categories through iterative, team-based meetings.

resultsWe identified four themes from the data: Importance of Memorabilia to Cope With the Death and Documentation of Pregnancy, Acceptance of Death as Part of the Pregnancy Experience, Continued Life Without a Child, and Importance of Empathy Throughout the Process.

conclusionThe themes support the existing research findings about the needs of pregnant women as they cope with difficult situations. Our findings show the necessity and importance of perinatal palliative care programs.

Indexed as

Palliative CarePerinatal CareChildFemaleHumansInfant, NewbornParturitionPregnancyPregnant PeopleQualitative Researchempathypalliative careperinatal carequalitative research

Identifiers

PMID33775641
PMCPMC8286290

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.