ArticleClinical practice in pediatric psychology2019
Community-Based Participatory Design for Research that Impacts the Lives of Transgender and/or Gender-Diverse Autistic and/or Neurodiverse People.
Article in Clinical practice in pediatric psychology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- "We Don't Normally Go Down This Avenue; This Is Normally Taboo": Using Co-Design to Develop a Training Intervention for Spiritual Health in Primary Care.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Gender Diversity, Gender Dysphoria/Incongruence, and the Intersection with Autism Spectrum Disorders: An Updated Scoping Review.Journal of autism and developmental disorders · 2026Article
- Disordered eating in autistic trans and gender diverse people: a lived experience-led scoping review.Journal of eating disorders · 2025Review
- Health and Health Care Access of Autistic Transgender and Nonbinary People in Canada: A Cross-Sectional Study.Autism in adulthood · 2025Article
- "There's hope and there's a future for all of us": Co-design of a group cognitive behavioral therapy (CBT) intervention for trans young people (TAG TEAM).International journal of transgender health · 2025Article
- "You Are the Expert of Your Own Experience": A Thematic Analysis of Experiences of Autism and Gender Diversity in Adulthood.Autism in adulthood · 2024Article
- Autism Spectrum Disorder and Anxiety Among Transgender Youth: Use of the Social Communication Questionnaire (SCQ).Journal of autism and developmental disorders · 2024Article
- The Current State of Health Inequities in COPD.Respiratory care · 2024Review
- Supporting the health and wellbeing of trans autistic school-aged youth: a systematic literature review.International journal of transgender health · 2024Review
- "Autism in adulthood · 2023Article
- The Gender-Diversity and Autism Questionnaire: A Community-Developed Clinical, Research, and Self-Advocacy Tool for Autistic Transgender and Gender-Diverse Young Adults.Autism in adulthood · 2023Article
- The Intersection of Autism and Transgender and Nonbinary Identities: Community and Academic Dialogue on Research and Advocacy.Autism in adulthood · 2023Article
- What Category Best Fits: Understanding Transgender Identity in a Survey of Autistic Individuals.Autism in adulthood · 2023Article
- Community Engagement in Research and Design of a Transgender Health Information Resource.Applied clinical informatics · 2023Article
- Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis.Journal of child psychology and psychiatry, and allied disciplines · 2023Article
- Transgender Youth Executive Functioning: Relationships with Anxiety Symptoms, Autism Spectrum Disorder, and Gender-Affirming Medical Treatment Status.Child psychiatry and human development · 2022Article
- Intersectionality Within Critical Autism Studies: A Narrative Review.Autism in adulthood · 2022Review
- The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis.Autism : the international journal of research and practice · 2022Article
- INSAR Special Interest Group Report: Stakeholder Perspectives on Priorities for Future Research on Autism, Sexuality, and Intimate Relationships.Autism research : official journal of the International Society for Autism Research · 2020Article
- From Collection to Collaboration: Building Ethical Frameworks for Genetic Research.Behavioral medicine (Washington, D.C.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
objectiveResearch addressing the co-occurrence of autism (and/or neurodiversity) and gender-diversity (A/ND-GD) has been conducted largely without the perspectives and voices of the A/ND-GD community. Including A/ND-GD community advocates as research partners may be a critical next step for advancing research initiatives on the co-occurrence given the apparent complexity and alterity of the A/ND-GD experience.
methodConsistent with the community-based participatory research (CBPR) model we propose herein, our authorship team includes a partnership between clinician researchers and diverse A/ND-GD community collaborators. Multiple facets of the A/ND-GD lived experience are examined, including through narratives provided by our A/ND-GD community partners.
resultsBased on our experience conducting A/ND-GD-related research and our lived experience as A/ND-GD self-advocates, we highlight challenges in this line of research, including risks of conducting studies without the involvement of the A/ND-GD community. And given that many A/ND-GD youth present with gender-related urgency during the teen years, we provide a developmental framework for how CBPR-informed methods may enrich our understanding of the care needs of these young people and provide context for the apparent heterogeneity in their gender needs and trajectories over time.
conclusionsIntegrating CBPR methodologies in A/ND-GD research initiatives has the potential to optimize the relevance of the research questions asked and the interpretation and contextualization of study findings.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.