ReviewPediatric research2022
Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood.
Review in Pediatric research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 147 papers, 9 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
147 citing papers in PubMed, 9 syntheses or guidelines pooled it, 260 citations in OpenAlex.
- Outcomes of Experiencing Interpersonal Violence in Autism: A Mixed Methods Systematic Review and Meta-Analysis.Trauma, violence & abuse · 2026Pooled it
- Artificial Intelligence Methods in Early Detection of Autism Spectrum Disorder: A DSM-5 Criterion-Based Systematic Review.Autism research : official journal of the International Society for Autism Research · 2026Pooled it
- Autistic Traits and Camouflaging: A Meta-Analysis.Autism : the international journal of research and practice · 2026Pooled it
- Enhancing emergency department care for individuals with autism spectrum disorder across the lifespan: a systematic review.Frontiers in health services · 2026Pooled it
- Oral care interventions for autistic individuals: A systematic review.Autism : the international journal of research and practice · 2025Pooled it
- Exploring the landscape of adult autism research in psychology: a bibliometric and network analysis.Frontiers in psychology · 2024Pooled it
- Risks Associated With Undiagnosed ADHD and/or Autism: A Mixed-Method Systematic Review.Journal of attention disorders · 2023Pooled it
- Factors influencing oral health behaviours, access and delivery of dental care for autistic children and adolescents: A mixed-methods systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Mortality in Persons With Autism Spectrum Disorder or Attention-Deficit/Hyperactivity Disorder: A Systematic Review and Meta-analysis.JAMA pediatrics · 2022Pooled it
- Mobile App-Assisted Parent Training Intervention for Behavioral Problems in Children With Autism Spectrum Disorder: Pilot Randomized Controlled Trial.JMIR human factors · 2024Trial
- Quality of Life Among Saudi Mothers of Children with Autism Spectrum Disorder: Associations with Caregiver Burden, Psychological Distress, Financial Experiences, and Post-Diagnosis Service Pathway Clarity.Healthcare (Basel, Switzerland) · 2026Article
- Unintentional Drowning Incidents Involving Children with Autism Spectrum Disorder Treated in US Emergency Departments, 2016-2020.Journal of autism and developmental disorders · 2026Article
- Through Parents' Eyes: Perspectives on Child Development and Family Experience During ESDM Intervention.Autism research : official journal of the International Society for Autism Research · 2026Article
- Sexual and Reproductive Healthcare Among Youth With Autism and ADHD: A Population-Based Study From Sweden.Autism research : official journal of the International Society for Autism Research · 2026Article
- Remote Assessment of Physical Function and Physical Activity in Adults With Autism Spectrum Disorder: Protocol for Feasibility, Validity, and Reliability Study.JMIR research protocols · 2026Article
- Beyond Intervention: A Scoping Review of Parent Engagement in Parent-Implemented Intervention for Autistic Children.Journal of autism and developmental disorders · 2026Article
- The Meaning of Autism Friendly in Hospital Settings: A Scoping Review of the Autism Community's Perspectives.Journal of autism and developmental disorders · 2026Article
- Mental health disorders and suicide risk among autistic children, adolescents and adults: a population-based study using linked administrative data.Lancet regional health. Americas · 2026Article
- Ethical Complexities and Concerns Surrounding Magnetic Resonance Imaging and the Open-Access Scientific Framework in Autism Research.Autism in adulthood · 2026Article
- Implementing a parent-mediated intervention for toddlers with ASD within the Chinese child healthcare system: a real-world study.BMJ paediatrics open · 2026Article
87 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Most individuals with autism spectrum disorder (ASD)-a complex, life-long developmental disorder-do not have access to the care required to address their diverse health needs. Here, we review: (1) common barriers to healthcare access (shortage/cost of services; physician awareness; stigma); (2) barriers encountered primarily during childhood (limited screening/diagnosis; unclear referral pathways), transition to adulthood (insufficient healthcare transition services; suboptimal physician awareness of healthcare needs) and adulthood (shortage of services/limited insurance; communication difficulties with physicians; limited awareness of healthcare needs of aging adults); and (3) advances in research/program development for better healthcare access. A robust understanding of barriers to accessing healthcare across the lifespan of autistic individuals is critical to ensuring the best use of healthcare resources to improve social, physical, and mental health outcomes. Stakeholders must strengthen healthcare service provision by coming together to: better understand healthcare needs of underserved populations; strengthen medical training on care of autistic individuals; increase public awareness of ASD; promote research into/uptake of tools for ASD screening, diagnosis, and treatment; understand specific healthcare needs of autistic individuals in lower resource countries; and conduct longitudinal studies to understand the lifetime health, social, and economic impacts of ASD and enable the evaluation of novel approaches to increasing healthcare access. IMPACT: Despite the growing body of evidence, our understanding of barriers to healthcare encountered by individuals with ASD remains limited, particularly beyond childhood and in lower resource countries. We describe current and emerging barriers to healthcare access encountered by individuals with ASD across the lifespan. We recommend that stakeholders develop evidence-informed policies, programs, and technologies that address barriers to healthcare access for individuals with ASD and consider broad, equitable implementation to maximize impact.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.