ArticlePalliative medicine2021
Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 3 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 3 syntheses or guidelines pooled it, 23 citations in OpenAlex.
- Qualitative studies on men with prostate cancer: a systematic meta-synthesis.International journal of qualitative studies on health and well-being · 2025Pooled it
- First generation migrants' experiences of terminal illness: a systematic review of diasporic dying.BMC palliative care · 2025Pooled it
- Risk factors for poor bereavement outcomes and the support needs of adult bereaved refugees within the psychosocial-cultural concept of personhood: a systematic review.Frontiers in public health · 2025Pooled it
- Trauma-informed palliative care: A systematic scoping review of evidence sources describing concepts relevant to an emerging field of practice.Palliative medicine · 2026Article
- Migrant families' experiences of participating in the Family Talk Intervention when affected by childhood cancer.Acta oncologica (Stockholm, Sweden) · 2025Article
- Access to opioids for palliative care in humanitarian settings: two case studies of Médecins Sans Frontières (MSF) experience in India and Bangladesh.BMC palliative care · 2025Article
- Exploring the experiences of children's palliative care for forced migrant families in the United Kingdom: an interpretative phenomenological study.Frontiers in pediatrics · 2024Article
- Addressing health disparities: Palliative care for migrants and refugees in the Eastern Mediterranean Region.Asia-Pacific journal of oncology nursing · 2023Article
- Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study.Frontiers in oncology · 2023Article
- Providing person-centered palliative care in conflict-affected populations in the Middle East: What matters to patients with advanced cancer and families including refugees?Frontiers in oncology · 2023Article
- Access to advanced cancer care services in the West Bank-occupied Palestinian territory.Frontiers in oncology · 2023Article
- Concerns and priority outcomes for children with advanced cancer and their families in the Middle East: A cross-national qualitative study.Frontiers in oncology · 2023Article
- Building evidence and capacity in global health palliative care.Ecancermedicalscience · 2022Article
Corrections and comments
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Authors and funding
10 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAlthough palliative care is now an essential health service under Universal Health Coverage, ensuring access and appropriate care for refugees is a specific challenge for this large population.
aimTo identify the needs and experiences of adult refugees in Jordan with advanced cancer and informal caregivers.
designA qualitative study using semi-structured interviews. SETTING/
participantsParticipants were purposively sampled at two Jordanian hospitals to achieve heterogeneity by age, gender, country of origin, and primary diagnosis.
resultsTwenty-nine refugees (22 patients, 7 caregivers) participated, and four themes were generated: (1) Psychological distress and sustaining social support. Refugees often experienced unmet psychosocial needs. However, psychosocial support was reported either absent or limited. (2) Knowledge and uncertainty. Lack of information and poor communication between healthcare providers and patients caused significant distress due to uncertainty. (3) Family anxiety and support roles. Being away from the home country cut patients and caregivers off from their wider social support network, which added increased anxiety and responsibilities to caregivers. (4) Compounded trauma and poverty. Many refugees have experienced trauma related to war that may affect their physical and mental health. They faced serious financial crises caused by the rising cost of medicines and treatment.
conclusionsThis study reveals the impact of fractured families and networks on social support in advanced cancer, and the compounding trauma of the disease for refugees. Detailed person-centred assessment and emphasis on psychosocial support is essential, and home-based care should not presume community support for patients to remain at home.
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