ArticleWomen's health (London, England)
"I never heard anything about it": Knowledge and psychosocial needs of Latina breast cancer survivors with lymphedema.
Article in Women's health (London, England). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 26 citations in OpenAlex.
- Breast cancer survivors-supportive care needs: systematic review.BMJ supportive & palliative care · 2023Pooled it
- Patient education for breast cancer-related lymphedema: a systematic review.Journal of cancer survivorship : research and practice · 2023Pooled it
- Patient personas of delayed healthcare-seeking behavior among patients with breast cancer-related lymphedema: A qualitative study.Asia-Pacific journal of oncology nursing · 2026Article
- Lymphedema imaging and AI: A review of diagnostic modalities, biomarkers, and clinical integration.Biomedical journal · 2026Review
- Experience of family caregivers of breast cancer-related lymphedema patients participating in lymphedema management: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- A phenomenological study of women with breast cancer-related lymphedema using the healthcare system.The British journal of occupational therapy · 2025Article
- Sleep quality and lymphedema in breast cancer survivors: a mixed method analysis.Journal of cancer survivorship : research and practice · 2025Article
- Assessing the Impact of Lymphedema Therapy Referral on Breast Cancer Survivors' Lymphedema Knowledge: A Cross-Sectional Survey.BMC women's health · 2025Article
- Assessing body awareness and upper extremity functionality in breast cancer survivors with and without lymphedema: a comparative analysis with healthy controls.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Factors Influencing Coping Strategies of Women with Advanced Gynecological Cancer: A Secondary Analysis.International journal of women's health · 2025Article
- Knowledge, Attitudes, and Practices of Chinese Breast Cancer Patients Towards Comprehensive Postoperative Self-Management: a Cross-Sectional Study.Journal of multidisciplinary healthcare · 2025Article
- YouTube videos on lymphedema as an information source for Spanish speaking breast cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Lymphatic pain in breast cancer survivors: An overview of the current evidence and recommendations.Women and children nursing · 2024Article
- Breast cancer survivorship needs: a qualitative study.BMC cancer · 2024Article
- Knowledge, Attitude, and Practice of Breast Cancer Patients Toward Lymphedema Complications: Cross-Sectional Study.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Neighborhood socioeconomic status and low-value breast cancer care.Journal of surgical oncology · 2022Article
Corrections and comments
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Authors and funding
7 authors at 6 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveBreast cancer is the most commonly diagnosed form of cancer and the leading cause of cancer-related death among Latina women in the United States. One aspect of recovery that has been underrepresented in the English-language literature is the recovery of Latina women who have developed lymphedema, a debilitating condition characterized by persistent swelling of the arm, hand, chest, and/or breast. To fill this research gap, a study was conducted to examine the lived experiences of Latina women with breast cancer-related lymphedema.
methodsGiven the limited scholarship on this topic, qualitative methods were used to obtain a foundational and nuanced understanding of Latina women's experiences. Semi-structured interviews were conducted with a sample of 10 Latina survivors with breast cancer-related lymphedema. Data were analyzed through thematic analysis and constant comparison methodology.
resultsThe data analysis yielded three major themes: knowledge of lymphedema, impact of lymphedema diagnosis, and coping with lymphedema. Participants had limited knowledge of lymphedema and its risk factors upon diagnosis, in addition to barriers accessing quality care. They also noted psychological distress related to a significant financial burden as well as social anxiety related to interacting with others while wearing compression gloves or sleeves. A major coping strategy was receiving social support from friends, family, peers in structured support groups, and spiritual/religious groups or practices.
conclusionsOur findings bring to light contextual factors that may place Latina breast cancer survivors at increased risk for lymphedema and for experiencing a high burden managing their condition. Recommendations are provided for primary, secondary, and tertiary prevention.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.