Evidence map›Paper›PMID 33763845›Full record

ArticleApplied clinical informatics2021

Personalized Massive Open Online Course for Childhood Cancer Survivors: Behind the Scenes.

Claire Berger, Léonie Casagranda, Hélène Sudour-Bonnange, Catherine Massoubre, Jean-Hugues Dalle, Cecile Teinturier, Sylvie Martin-Beuzart, Pascale Guillot, Virginie Lanlo, Muriele Schneider and 7 more

Open access · bronzeAbstract read
In one paragraph

Article in Applied clinical informatics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
3.0field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 12 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 8 institutions in 1 country.

Claire BergerDepartment of Pediatric Hematology and Oncology, University-Hospital, Saint-Etienne, France.
Léonie CasagrandaDepartment of Pediatric Hematology and Oncology, University-Hospital, Saint-Etienne, France.
Hélène Sudour-BonnangeDepartment of Pediatric Oncology and AYA Unit Oscar Lambret Institute, Lille, France.
Catherine MassoubreDepartment of Psychiatry, University-Hospital of Saint-Etienne, Saint-Etienne, France.
Jean-Hugues DalleDepartment of Immunology and Hematology, Robert Debré Hospital, GH APHP-Nord Université de Paris, France.
Cecile TeinturierDepartment of Pediatric Endocrinology and diebetology, Bicêtre Hospital, Paris Sud University - Kremlin Bicêtre, France.
Sylvie Martin-BeuzartDepartment of Ophtalmology, Lagny-sur-Marne, France.
Pascale GuillotDepartment of Rhumatology, University Hospital Nantes, Nantes, France.
Virginie LanloConsultant, Communication and Pedagogical Designer Specialized in MOOC, Pantin, France.
Muriele SchneiderPhysical Medicine and Rehabilitation, SMAEC, Miribel, France.
Bernard Dal MolinAdvita Productions, Grenoble, France.
Michèle Dal MolinAdvita Productions, Grenoble, France.
Olivier MounierDepartment of Informatics, University Jean Monnet, Saint-Etienne, France.
Arnauld GarcinHost Research Team EA4607 SNA-EPIS, Jean Monnet University of Saint-Etienne, PRES Lyon, Saint-Etienne, France.
Brice FresneauInserm U 1018, CESP, Cancer and Radiation Team, University of Paris-Saclay, Paris-Sud University, Villejuif, France.
Jacqueline ClavelUMR-S1153, Inserm, Paris Descartes University, Paris, France.
Charlotte Demoor-GoldschmidtInserm U 1018, CESP, Cancer and Radiation Team, University of Paris-Saclay, Paris-Sud University, Villejuif, France.
Centre Hospitalier Universitaire de Saint-Étienne · FRUniversité Jean Monnet · FRAssistance Publique – Hôpitaux de Paris · FRBicêtre Hospital · FRCentre de recherche en Epidémiologie et Santé des Populations · FRCentre Oscar Lambret · FRDélégation Paris 5 · FRUniversité Paris-Sud · FR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundToday, in France, it is estimated that 1 in 850 people aged between 20 and 45 years has been treated for childhood cancer, which equals 40,000 to 50,000 people. As late effects of the cancer and its treatment affect a large number of childhood cancer survivors (CCS) and only 30% of them benefit from an efficient long-term follow-up care for prevention, early detection, and treatment of late effects, health education of CCS represents a challenge of public health.

objectivesMassive open online courses (MOOCs) are a recent innovative addition to the online learning landscape. This entertaining and practical tool could easily allow a deployment at a national level and make reliable information available for all the CCS in the country, wherever they live.

methodsThe MOOC team brings together a large range of specialists involved in the long-term follow-up care, but also associations of CCS, video producers, a communication consultant, a pedagogical designer, a cartoonist and a musician. We have designed three modules addressing transversal issues (lifestyle, importance of psychological support, risks of fertility problems) and eight modules covering organ-specific problems. Detailed data on childhood cancer treatments received were used to allocate the specific modules to each participant.

resultsThis paper presents the design of the MOOC entitled "Childhood Cancer, Living Well, After," and how its feasibility and its impact on CCS knowledge will be measured. The MOOC about long-term follow-up after childhood cancer, divided into 11 modules, involved 130 participants in its process, and resulted in a 170-minute film. The feasibility study included 98 CCS (31 males vs. 67 females;

conclusionSuch personalized, free, and online courses with an online forum and a possible psychologist consultation based on unique characteristics and needs of each survivor population could improve adherence to long-term follow-up without alarming them unnecessarily.

Indexed as

Cancer SurvivorsEducation, DistanceNeoplasmsAdultChildCommunicationFemaleHumansMaleMiddle AgedSurvivorsYoung Adult

Identifiers

PMID33763845
PMCPMC7990573
OpenAlexW3136093972

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.