ArticleJournal of applied research in intellectual disabilities : JARID2021
The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period.
Article in Journal of applied research in intellectual disabilities : JARID, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
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Who cites it
28 citing papers in PubMed, 74 citations in OpenAlex.
- Clinical and cost-effectiveness of an adapted intervention for preschoolers with moderate to severe intellectual disabilities displaying behaviours that challenge: the EPICC-ID RCT.Health technology assessment (Winchester, England) · 2024Trial
- Experiences of typically developing siblings of children with profound intellectual and multiple disabilities during the COVID-19 pandemic in Poland.International journal of developmental disabilities · 2026Article
- From Survival to Growth - The Coping Experience of Mothers of Children with Disabilities During a Global Crisis: The Case of COVID-19.Journal of autism and developmental disorders · 2025Article
- Navigating a New Normal: A Qualitative Look at Long-Term Care Planning for Children with Intellectual Disabilities Post-COVID-19.Healthcare (Basel, Switzerland) · 2024Article
- A study of the adaptation processes of individuals with intellectual disabilities and their mothers to COVID-19 restrictions.Journal of intellectual disabilities : JOID · 2024Article
- School Attendance Problems Among Children with Neurodevelopmental Conditions One year Following the Start of the COVID-19 Pandemic.Journal of autism and developmental disorders · 2024Article
- Mental health and coping strategies of caregivers of people with intellectual and developmental disabilities: the initial impact of the COVID-19 pandemic in Brazil.International journal of developmental disabilities · 2024Article
- Experiences of UK and Irish family carers of people with profound and multiple intellectual disabilities during the COVID-19 pandemic.BMC public health · 2023Article
- Experiences of parents of children with rare neurogenetic conditions during the COVID-19 pandemic: an interpretative phenomenological analysis.BMC psychology · 2023Article
- Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic.Journal of intellectual & developmental disability · 2023Article
- Impact of the COVID-19 pandemic on maternal mental health, early childhood development, and parental practices: a global scoping review.BMC public health · 2023Article
- The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey.Physical & occupational therapy in pediatrics · 2023Article
- Impact of the COVID-19 pandemic on family carers of those with profound and multiple intellectual disabilities: perspectives from UK and Irish Non-Governmental Organisations.BMC public health · 2022Article
- Parents with intellectual disability reporting on factors affecting their caregiving in the wake of the COVID-19 pandemic: A qualitative study.Journal of applied research in intellectual disabilities : JARID · 2022Article
- Parental perspectives of home-schooling of children with special educational needs and disabilities during the COVID-19 pandemic: a review.Journal of research in special educational needs : JORSEN · 2022Article
- Parenting Children with Autism Spectrum Disorder during Crises: Differential Responses between the Financial and the COVID-19 Pandemic Crisis.Journal of clinical medicine · 2022Article
- Impact of a Remotely Supervised Motor Rehabilitation Program on Maternal Well-Being During the COVID-19 Italian Lockdown.Frontiers in psychology · 2022Review
- Motherhood in Academia during the COVID-19 Pandemic: An International Online Photovoice Study Addressing Issues of Equity and Inclusion in Higher Education.Innovative higher education · 2022Article
- Lockdown in France: Impact on Families of Young Children With Special Needs.Frontiers in psychology · 2022Article
- Mental Health-Related Emergency Department Visits Among Children During The Early COVID-19 Pandemic.Psychiatric research and clinical practice · 2022Article
Corrections and comments
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Authors and funding
11 authors at 8 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRecent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
aimThe aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
methodsEight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
resultsThree main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
conclusionsAll mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.
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