Evidence map›Paper›PMID 33758797›Full record

ArticleJAMIA open2020

Harnessing mobile health technology to support long-term chronic illness management: exploring family caregiver support needs in the outpatient setting.

Ji Youn Shin, Dima Chaar, Jacob Kedroske, Rebecca Vue, Grant Chappell, Amanda Mazzoli, Afton L Hassett, David A Hanauer, Sun Young Park, Barton Debra and 1 more

Registry-linked trialOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JAMIA open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06991673 (Adolescent Surgery Roadmap Feasibility and Acceptability Study), which is not on this map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
2.9field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06991673 naenrolling by invitationnot on this mapstarted 2025, after this paper: background citation

Adolescent Surgery Roadmap Feasibility and Acceptability Study

TypeinterventionalSponsorUniversity of MichiganRan2025 to 2029Enrolled100ConditionsPediatric Surgical ProceduresArmsBehavioral Treatment
3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it, 15 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 2 institutions in 1 country.

Ji Youn ShinDepartment of Media and Information, College of Communication Arts and Sciences, Michigan State University, East Lansing, Michigan, USA.
Dima ChaarDepartment of Biostatistics, School of Public Health, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0001-6755-0179
Jacob KedroskeDepartment of Pediatrics, Blood and Marrow Transplantation Program, University of Michigan, Ann Arbor, Michigan, USA.
Rebecca VueDepartment of Pediatrics, Blood and Marrow Transplantation Program, University of Michigan, Ann Arbor, Michigan, USA.
Grant ChappellDepartment of Pediatrics, Blood and Marrow Transplantation Program, University of Michigan, Ann Arbor, Michigan, USA.
Amanda MazzoliDepartment of Pediatrics, Blood and Marrow Transplantation Program, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0001-6625-3092
Afton L HassettDepartment of Anesthesiology, University of Michigan, Ann Arbor, Michigan, USA.
David A HanauerMichigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, Michigan, USA.
Sun Young ParkSchool of Information, University of Michigan, Ann Arbor, Michigan, USA.
Barton DebraSchool of Nursing, University of Michigan, Ann Arbor, Michigan, USA.
Sung Won ChoiDepartment of Pediatrics, Blood and Marrow Transplantation Program, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0002-6321-3834
University of Michigan · USMichigan State University · US

Funding

Roadmap 2.0: A randomized controlled trial using a technology-mediated platform in family caregivers of BMT patientsR01HL146354 · NHLBI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI CHOI, SUNG WON · 2019 to 2023
$1.8M
NHLBI NIH HHS R01 HL146354
6 · The paper itself

Abstract

objectiveFamily caregiving is an important public health issue, particularly with the aging population. In recent years, mobile health (mHealth) technology has emerged as a potential low-cost, scalable platform to address caregiver support needs, and thereby alleviate the burden on caregivers. This study sought to examine the support needs of family caregivers in their lived experiences of outpatient care to inform the development of a future mHealth intervention. MATERAILS AND

methodsWe conducted 20 semi-structured interviews in 2 outpatient hematopoietic cell transplant (HCT) clinics at a large academic medical center in the Midwestern United States. A thematic analysis was performed to define emerging themes.

resultsQualitative data analysis identified 5 primary themes that HCT caregivers faced: (I) lifestyle restrictions due to the patient's immunocompromised state; (II) Unmet needs due to limitations in the current resources, including unfamiliar medical tasks without necessary trainings; and (III) caregivers' adaptive strategies, including reformation of social relationships with family and friends. Based on these findings, we suggest 3 design considerations to guide the development of a future mHealth intervention.

conclusionsThe findings herein captured the family caregiver's lived experiences during outpatient care. There was broad agreement that caregiving was challenging and stressful. Thus, effective and scalable interventions to support caregivers are needed. This study provided data to guide the content and design of a future mHealth intervention in the outpatient setting.

Indexed as

bone marrow transplantationfamily caregiverhematopoietic cell transplantationmHealth

Identifiers

PMID33758797
PMCPMC7969961
OpenAlexW3106958838

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.