Evidence map›Paper›PMID 33757615›Full record

Trial reportInternational psychogeriatrics2021

A longitudinal evaluation of family caregivers' willingness to pay for an in-home nonpharmacologic intervention for people living with dementia: results from a randomized trial.

Eric Jutkowitz, Laura T Pizzi, Jonah Popp, Katherine K Prioli, Danny Scerpella, Katherine Marx, Quincy Samus, Catherine Verrier Piersol, Laura N Gitlin

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in International psychogeriatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

9 authors.

Eric JutkowitzDepartment of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA.ORCID 0000-0002-1735-8434
Laura T PizziCenter for Health Outcomes, Policy, and Economics, Rutgers University Ernest Mario School of Pharmacy, Piscataway, NJ, USA.
Jonah PoppDepartment of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA.
Katherine K PrioliCenter for Health Outcomes, Policy, and Economics, Rutgers University Ernest Mario School of Pharmacy, Piscataway, NJ, USA.
Danny ScerpellaJohns Hopkins University Center for Innovative Care in Aging, Baltimore, MD, USA.
Katherine MarxJohns Hopkins University Center for Innovative Care in Aging, Baltimore, MD, USA.
Quincy SamusDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Catherine Verrier PiersolThomas Jefferson University, Department of Occupational Therapy, Philadelphia, PA, USA.
Laura N GitlinCollege of Nursing and Health Professions, Drexel University, Philadelphia, PA, USA.

Funding

Improving Outcomes for Family Caregivers and Older Adults with Complex Conditions: The Adult Day Service Plus ProgramR01AG049692 · NIA · JOHNS HOPKINS UNIVERSITY · PI GAUGLER, JOSEPH E., GITLIN, LAURA N. · 2016 to 2020
$4.9M
Reducing Agitation in Dementia Patients at Home: The Customized Activity TrialR01AG041781 · NIA · JOHNS HOPKINS UNIVERSITY · PI GITLIN, LAURA N. · 2012 to 2017
$3.3M
Microsimulation Modeling to Compare the Effectiveness and Cost-Effectiveness of Nondrug Interventions to Manage Clinical Symptoms in Racially/Ethnically Diverse Persons with DementiaR01AG060871 · NIA · BROWN UNIVERSITY · PI JUTKOWITZ, ERIC · 2019 to 2022
$1.7M
Informal Resources of Persons Living with Alzheimer's Disease and Related Dementias: Impact on Hospitalizations, Potentially Avoidable Hopsitalizations and Nursing Home AdmissionsR21AG059623 · NIA · BROWN UNIVERSITY · PI JUTKOWITZ, ERIC · 2018 to 2019
$454k
NIA NIH HHS R01 AG041781NIA NIH HHS R01 AG049692NIA NIH HHS R01 AG060871NIA NIH HHS R21 AG059623
6 · The paper itself

Abstract

objectiveTo determine the willingness-to-pay (WTP) of family caregivers to learn care strategies for persons living with dementia (PLwD).

designRandomized clinical trial.

settingCommunity-dwelling PLwD and their caregivers (dyads) in Maryland and Washington, DC.

participants250 dyads.

interventionTailored Activity Program (TAP) compared to attention control. TAP provides activities tailored to the PLwD and instructs caregivers in their use. MEASUREMENT: At baseline, 3 and 6 months, caregivers were asked their WTP per session for an 8-session 3-month in-home nonpharmacologic intervention to address behavioral symptoms and functional dependence.

resultsAt baseline, 3 and 6 months, caregivers assigned to TAP were willing to pay $26.10/session (95%CI:$20.42, $33.00), $28.70 (95%CI:$19.73, $39.30), and $22.79 (95%CI: $16.64, $30.09), respectively; attention control caregivers were willing to pay $37.90/session (95%CI: $27.10, $52.02), $30.92 (95%CI: $23.44, $40.94), $27.44 (95%CI: $20.82, $35.34), respectively. The difference in baseline to 3 and 6 months change in WTP between TAP and the attention control was $9.58 (95%CI: -$5.00, $25.47) and $7.15 (95%CI: -$5.72, $21.81). The difference between TAP and attention control in change in the proportion of caregivers willing to pay something from baseline to 3 and 6 months was -12% (95%CI: -28%, -5%) and -7% (95%CI:-25%, -11%), respectively. The difference in change in WTP, among caregivers willing to pay something, between TAP and attention control from baseline to 3 and 6 months was $17.93 (95%CI: $0.22, $38.30) and $11.81 (95%CI: -$2.57, $28.17).

conclusionsFamily caregivers are willing to pay more for an intervention immediately following participation in a program similar to which they were asked to value.

Indexed as

Aged, 80 and overBehavioral SymptomsCaregiversDementiaDistrict of ColumbiaFamily HealthFemaleHumansIndependent LivingLongitudinal StudiesMaleMarylandMiddle Agedcaregivingdementialong-term care

Identifiers

PMID33757615
PMCPMC8635284

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.