Evidence map›Paper›PMID 33751375›Full record

ArticleJournal of autism and developmental disorders2022

A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives.

Marisa Petruccelli, Leah Ramella, Ana J Schaefer, R Christopher Sheldrick, Alice S Carter, Abbey Eisenhower, Sarabeth Broder-Fingert, Thomas I Mackie

Open access · greenAbstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
0.8field-weighted citation impact, top 32% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Psychological Impact of Autism Screening on Caregivers.Autism research : official journal of the International Society for Autism Research · 2026
    Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 4 institutions in 1 country.

Marisa PetruccelliDepartment of Psychology, University of Massachusetts Boston, 100 Morrissey Boulevard, Boston, MA, 02125, USA. marisa.petruccelli@umb.edu.ORCID http://orcid.org/0000-0002-0387-9132
Leah RamellaDepartment of Health Law, Policy and Management, School of Public Health, Boston University, One Silber Way, Boston, MA, 02215, USA.
Ana J SchaeferRutgers School of Public Health, 683 Hoes Lane West, Piscataway, NJ, USA.
R Christopher SheldrickDepartment of Health Law, Policy and Management, School of Public Health, Boston University, One Silber Way, Boston, MA, 02215, USA.
Alice S CarterDepartment of Psychology, University of Massachusetts Boston, 100 Morrissey Boulevard, Boston, MA, 02125, USA.
Abbey EisenhowerDepartment of Psychology, University of Massachusetts Boston, 100 Morrissey Boulevard, Boston, MA, 02125, USA.
Sarabeth Broder-FingertDepartment of Pediatrics, Boston Medical Center, One Boston Medical Center Place, Boston, MA, 02118, USA.
Thomas I MackieRutgers School of Public Health, 683 Hoes Lane West, Piscataway, NJ, USA.
University of Massachusetts Boston · USBoston University · USRutgers, The State University of New Jersey · USBoston Medical Center · US

Funding

Building a theoretic framework and measures clearinghouse to assess risks and benefits of ASD screening for young children with autismR01MH104400 · NIMH · UNIVERSITY OF MASSACHUSETTS BOSTON · PI CARTER, ALICE S., SHELDRICK, RADLEY C. · 2014 to 2018
$4.3M
HRSA HHS MPI; R40MC26195NIMH NIH HHS R01 MH104400NIMH NIH HHS R01MH104400
6 · The paper itself

Abstract

The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences.

Indexed as

Autism Spectrum DisorderChildChild, PreschoolEarly Intervention, EducationalHumansMass ScreeningParentsPediatriciansAutism spectrum disorderHarmsHealthcare providersParentsQualitative methodsScreening

Identifiers

PMID33751375
PMCPMC8455720
OpenAlexW3138997252

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.