ArticleHealth expectations : an international journal of public participation in health care and health policy2021
'A limpet on a ship': Spatio-temporal dynamics of patient and public involvement in research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 29 citations in OpenAlex.
- Group Poetry and Quilt-Making -Creative Public Involvement Approaches to Contentious Concepts in Frailty Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Do Androids Dream of Lived Experience? Navigating Risks, Uncertainty, and Best Practices Around Generative AI in Patient and Public Involvement and Engagement.Journal of medical Internet research · 2026Article
- "We don't get asked": including people with workforce experience as public contributors in a workforce-related study about homecare work towards the end-of-life.Research involvement and engagement · 2026Article
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The 'Public' in Public Involvement: A Call to Centre Frontline Staff Voices in Health Workforce Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Layering perspectives: a structured approach to meaningful patient and public involvement and engagement in the RETURN dental trial.Research involvement and engagement · 2026Article
- Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Measuring impacts of patient and public involvement and engagement (PPIE): a narrative review synthesis of review evidence.Research involvement and engagement · 2025Review
- Understanding Barriers to Engagement With a Prostate Cancer Research and Genetic Risk Service Among UK Men of Black African or Black Caribbean Ancestry.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Patient Bridge Role: a new approach for patient and public involvement in healthcare research programmes.BMJ open · 2025Review
- Article
- Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- "There's no us vs. them, it's just us": a creative approach to centring lived experience within the AVATAR2 trial.BMC psychiatry · 2024Article
- "I am there just to get on with it": a qualitative study on the labour of the patient and public involvement workforce.Health research policy and systems · 2024Article
- Digital endpoints in clinical trials: emerging themes from a multi-stakeholder Knowledge Exchange event.Trials · 2024Article
- Barriers to Meaningful Participatory Mental Health Services Research and Priority Next Steps: Findings From a National Survey.Psychiatric services (Washington, D.C.) · 2023Article
- Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials.Trials · 2023Article
- Using social media for patient and public involvement and engagement in health research: The process and impact of a closed Facebook group.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Contributors are representative, as long as they agree: How confirmation logic overrides effort to achieve synthesis in applied health research.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- A qualitative evaluation of coproduction of research: 'If you do it properly, you will get turbulence'.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo understand how current funding expectations that applied health research is undertaken in partnership with research institutions, health service providers and other stakeholders may impact on patient and public involvement (PPI).
backgroundWhile there is considerable research on the potential impact of PPI in health research, the processes of embedding PPI in research teams remain understudied. We draw on anthropological research on meetings as sites of production and reproduction of institutional cultures and external contexts to investigate how these functions of meetings may affect the potential contributions of patients, carers and the public in research.
methodsWe present an ethnography of meetings that draws from a larger set of case studies of PPI in applied health research settings. The study draws on ethnographic observations, interviews with team members, analysis of documents and a presentation of preliminary findings through which feedback from informants was gathered.
resultsWe identified four means by which the oversight meetings regulated research and constrained the possibilities for PPI: a logic of 'deliverables' and imagined interlocutors, the performance of inclusion, positioning PPI in an 'elsewhere' of research, and the use of meetings to embed apprenticeship for junior researchers.
conclusionsPPI is essentially out of sync from the institutional logic of 'deliverables' constituting research partnerships. Embedding PPI in research requires challenging this logic.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.