Evidence map›Paper›PMID 33742546›Full record

ArticlePediatric blood & cancer2021

The comfort ability program for adolescents with sickle cell pain: Evaluating feasibility and acceptability of an inpatient group-based clinical implementation.

Soumitri Sil, Jennifer L Lee, James Klosky, Angela Vaz, Laura Mee, Shavontia Cochran, Beth Thompson, Rachael Coakley

Abstract read
In one paragraph

Article in Pediatric blood & cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Self-management interventions for children and young people with sickle cell disease: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023
    Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Soumitri SilDepartment of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.ORCID 0000-0001-7207-0524
Jennifer L LeeDepartment of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.ORCID 0000-0003-1334-7671
James KloskyDepartment of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.
Angela VazDepartment of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.
Laura MeeDepartment of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.
Shavontia CochranAflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, Georgia, USA.
Beth ThompsonDepartment of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.
Rachael CoakleyDepartment of Anesthesia, Critical Care, and Pain Medicine and Department of Psychiatry, Harvard Medical School and Boston Children's Hospital, Boston, Massachusetts, USA.ORCID 0000-0001-7284-1616

Funding

Evidence-based Approaches to Chronic Pain Management in Youth with Sickle Cell DiseaseK23HL133457 · NHLBI · EMORY UNIVERSITY · PI SIL, SOUMITRI · 2017 to 2021
$748k
NHLBI NIH HHS K23 HL133457
6 · The paper itself

Abstract

backgroundIntegration of nonpharmacological therapies, such as cognitive and behavioral pain management strategies, is recommended to support comprehensive disease and pain management among children and adolescents with sickle cell disease (SCD). The Comfort Ability Program for Sickle Cell Pain (CAP for SCP) introduces psychological and biobehavioral pain management strategies to children and adolescents with SCD. This study aimed to pilot the implementation of the CAP for SCP in a group setting to children and adolescents hospitalized for SCD pain examining feasibility, acceptability, and preliminary effectiveness on improving pain knowledge and coping efficacy.

methodAdaptation of CAP for SCP into a three-session group format was guided by four phases of the Dynamic Adaptation Process model: Exploration, Preparation, Implementation, and Sustainment. Youth with SCD (n = 57) hospitalized for pain participated in at least one session and completed self-report of knowledge of pain management skills, pain coping efficacy, and treatment acceptance. Completion rates of sessions and qualitative feedback were gathered to evaluate feasibility and acceptability.

resultsFeasibility of conducting inpatient group sessions was suboptimal; however, patients and medical providers reported moderate to high levels of treatment acceptance. Patients also reported significant improvements in knowledge of pain management skills following session 1.

conclusionsCAP for SCP is a patient-centered first-line psychoeducational intervention that can be integrated into clinical practice settings to introduce youth to cognitive and behavioral pain management strategies to support SCD pain management.

Indexed as

Adaptation, PsychologicalAdolescentAnemia, Sickle CellChildChronic PainCognitive Behavioral TherapyHemoglobin, SickleHumansPain ManagementPain MeasurementPatient-Centered CarePsychotherapy, GroupTreatment Adherence and ComplianceHemoglobin, Sicklecognitive-behavioral therapypain managementpediatricssickle cell disease

Identifiers

PMID33742546
PMCPMC8085908

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.