ArticlePediatric nephrology (Berlin, Germany)2021
COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions.
Article in Pediatric nephrology (Berlin, Germany), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- The Impact of the COVID-19 Pandemic on Patients With CKD: Systematic Review of Qualitative Studies.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2023Pooled it
- Article
- The Evaluation of Change in Psychosocial Risk With Caregivers of Children With Chronic Kidney Disease: A Short-term Longitudinal Mixed-Methods Study.Canadian journal of kidney health and disease · 2025Article
- Impact of COVID-19 on patient experience of kidney care: a rapid review.Journal of nephrology · 2024Review
- The Impact of COVID-19 on Children and Adolescents with Chronic Illness.Advances in experimental medicine and biology · 2024Review
- Age and sex-related comparison of referral-based telemedicine service utilization during the COVID-19 pandemic in Ontario: a retrospective analysis.BMC health services research · 2023Article
- COVID-19- Experiences and support needs of children and young people with Hydrocephalus and parents in the United Kingdom.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Article
- Article
- Nephrologists' perspectives on the impact of COVID-19 on caring for patients undergoing dialysis in Latin America: a qualitative study.BMJ open · 2023Article
- Impact of the COVID-19 pandemic on the kidney community: lessons learned and future directions.Nature reviews. Nephrology · 2022Review
- A Qualitative Serial Analysis of Drawings by Thirteen-to Fifteen-Year-Old Adolescents in Sweden About the First Wave of the Covid-19 Pandemic.Qualitative health research · 2022Article
- It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness.PloS one · 2022Article
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9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDuring the initial COVID-19 pandemic, young United Kingdom (UK) kidney patients underwent lockdown and those with increased vulnerabilities socially isolated or 'shielded' at home. The experiences, information needs, decision-making and support needs of children and young adult (CYA) patients or their parents during this period is not well known.
methodsA UK-wide online survey co-produced with patients was conducted in May 2020 amongst CYA aged 12-30, or parents of children aged < 18 years with any long-term kidney condition. Participants answered qualitative open text alongside quantitative closed questions. Thematic content analysis using a three-stage coding process was conducted.
resultsOne-hundred and eighteen CYA (median age 21) and 197 parents of children (median age 10) responded. Predominant concerns from CYA were heightened vigilance about viral (68%) and kidney symptoms (77%) and detrimental impact on education or work opportunities (70%). Parents feared the virus more than CYA (71% vs. 40%), and had concerns that their child would catch the virus from them (64%) and would have an adverse impact on other children at home (65%). CYA thematic analysis revealed strong belief of becoming seriously ill if they contracted COVID-19; lost educational opportunities, socialisation and career development; and frustration with the public for not following social distancing rules. Positive outcomes included improved family relationships and community cohesion. Only a minority (14-21% CYA and 20-31% parents, merged questions) desired more support. Subgroup analysis identified greater negative psychological impact in the shielded group.
conclusionsThis survey demonstrates substantial concern and need for accurate tailored advice for CYA based on individualised risks to improve shared decision making.
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