ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Insights on emotional distress following cancer, sources of support and the unmet needs in a setting with limited supportive care services for people living with cancer.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed, 10 citations in OpenAlex.
- Exploration of patients and multidisciplinary point of view about the self-care needs of patients with a stoma: a qualitative study.BMC cancer · 2026Article
- "Everything I do is for your own good!" Exploring the real experience of family support for cancer survivors' return-to-work in China: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Cancer survivorship in the Western Pacific: from differences to shared-goals and from challenges to opportunities.The Lancet regional health. Western Pacific · 2025Review
- Supportive Care Needs of Individuals With Colorectal Cancer in a Low- and Middle-Income Setting: Implications for Advancing Patient-Centered Cancer Care.Psycho-oncology · 2025Article
- Development and validation of a dual language needs assessment tool for people living with colorectal cancer (NeAT-CC).PloS one · 2025Article
- Nurse-patient communication experiences from the perspective of Iranian cancer patients in an outpatient oncology clinic: a qualitative study.BMC nursing · 2024Article
- 'Only to reconcile with it'. The coping experience amongst middle-aged and older cancer survivors: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Development and Validation of a Dual-Language (English and Malay) Needs Assessment Tool for Breast Cancer (NeAT-BC).Diagnostics (Basel, Switzerland) · 2023Article
- Psychological distress and health-related quality of life among women with breast cancer: a descriptive cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Association Between Adherence to Clinical Practice Guidelines for Adjuvant Therapy for Breast Cancer and Survival in a Resource-Limited Setting.JCO global oncology · 2022Article
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Corrections and comments
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Authors and funding
9 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionDelivery of supportive cancer care is often deemed a low priority in resource-limited settings. We aimed to explore the sources of emotional distress, the related support and the unmet needs of cancer survivors in Malaysia, where cancer survivorship services are presently limited.
methodTwenty focus group discussions were conducted with 102 cancer patients from diverse ethnic and socioeconomic backgrounds. Thematic analyses were performed.
resultsPatient narratives suggested that emotional distress arose from direct and indirect stressors. Direct stressors comprised physical and cognitive side effects of cancer surgery and therapies, and fear of recurrence. Indirect stressors included worry over dependent family members, financial distress following cancer, working with cancer and lack of practical support at home. Distress from altered physical appearances, fear of recurrence and lack of practical support were mainly raised by women, implying that men and women may have disproportionate emotional needs. Emotional support largely came from informal sources including self, family, friends and religion. While formal emotional support from professional counsellors and cancer support groups was acknowledged as important, it appeared to be largely lacking. Unmet needs in coping with fear of recurrence, financial distress, workplace discrimination and household chores were particularly highlighted.
conclusionThe unmet needs revealed in this study provide insights to initiate actionable changes to improve the emotional wellbeing of people living with cancer in settings where cancer survivorship services are still in its infancy.
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