ArticleResearch in developmental disabilities2021
It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism.
Article in Research in developmental disabilities, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it, 77 citations in OpenAlex.
- A systematic review of the use of telehealth to facilitate a diagnosis for children with developmental concerns.Research in developmental disabilities · 2022Pooled it
- Feasibility and Initial Efficacy of an Adapted Telepractice Listening Comprehension Intervention for School-Aged Children with Autism.Journal of autism and developmental disorders · 2023Trial
- Telehealth Versus In-Person Caregiver-Mediated Behavioral Treatment for Challenging Behaviors in Children With Autism Spectrum Disorder: Protocol for COACH (Caregiver Outreach for Autism Coaching at Home) Randomized Controlled Trial.JMIR research protocols · 2026Article
- Altered kinship vocal dynamics in marmosets with valproic acid-induced model of autism.iScience · 2026Article
- Sociodemographic Factors Associated with Autistic Youth's Psychotherapy Service Use.Administration and policy in mental health · 2025Article
- Article
- An online survey of perspectives towards the impact of the covid-19 pandemic amongst caregivers of adolescents with ASD.BMC nursing · 2024Article
- COVID-19 and Neurodevelopmental Disabilities: Examining the Impact of the First 2 Years of the Pandemic on the Demand for Pediatric Inpatient Care.Journal of autism and developmental disorders · 2024Article
- Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study.Autism : the international journal of research and practice · 2024Article
- Improved motor skills in autistic children after three weeks of neurologic music therapy via telehealth: a pilot study.Frontiers in psychology · 2024Article
- Client and Clinician Experiences and Perspectives of Exercise Physiology Services During the COVID-19 Pandemic: Qualitative Study.Journal of medical Internet research · 2023Article
- Parent Coaching in Early Intervention for Autism Spectrum Disorder: A Brief Report.Journal of early intervention · 2023Article
- Serving Individuals With Autism Spectrum Disorder in the Age of COVID-19: Special Considerations for Rural Families.Rural special education quarterly · 2023Article
- The Impact of School Strategies and the Home Environment on Home Learning Experiences During the COVID-19 Pandemic in Children With and Without Developmental Disorders.Journal of autism and developmental disorders · 2023Article
- The Resilience of Caregivers and Children in the Context of COVID-19: A Systematic Review.Journal of child & adolescent trauma · 2023Article
- 'The key to this is not so much the technology. It's the individual who is using the technology': Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic.Autism : the international journal of research and practice · 2023Article
- How to Make the Unpredictable Foreseeable? Effective Forms of Assistance for Children with Autism Spectrum Disorder (ASD) during the COVID-19 Pandemic.Diagnostics (Basel, Switzerland) · 2023Review
- A mixed-methods examination of clinicians' perceived barriers to telehealth delivered applied behavior analysis.Frontiers in psychology · 2023Article
- Parenting a Child with a Neurodevelopmental Disorder during the Early Stage of the COVID-19 Pandemic: Quantitative and Qualitative Cross-Cultural Findings.International journal of environmental research and public health · 2022Article
- Brief Report: A Pilot Study Examining the Effects of PEERS® for Adolescents Telehealth for Autistic Adolescents.Journal of autism and developmental disorders · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Shelter in place mandates due to the COVID-19 pandemic left caregivers to determine how to best meet the therapeutic requirements of their children with autism spectrum disorder (ASD). Understanding the challenges faced by families, and their experiences using telehealth for the first time, may help make services sustainable in future public health emergencies. A sample of 70 caregivers of people with ASD from across the US completed an anonymous online survey. Results indicate that impaired emotion regulation was a primary contributor of parent-reported stress for persons with ASD during the pandemic, while loss of established structure and routine contributed to parental stress. Nearly half the sample reported using telehealth for the first time. Many caregivers were appreciative that telehealth permitted continuation of services, but expressed concerns about limited effectiveness due in part to their children's social communication problems.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.