ArticleHealth expectations : an international journal of public participation in health care and health policy2021
The manifestation of participation within a co-design process involving patients, significant others and health-care professionals.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 31 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Missing Link- Development and Feasibility Evaluation of Person-centred Transitions From the Stroke Unit to the Home - a Co-design Project
Implementation and Evaluation of a Person-centred Care Transition Support for People With Stroke/TIA
Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Exploring co-design: a systematic review of concepts, processes, models, and frameworks used in public health research.Journal of public health (Oxford, England) · 2025Pooled it
- 'That Essence of Empowerment': An Exploration of People Living With Mental Illness', Healthcare Professionals', and Researchers' Experiences of Co-Design.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The Rural Community-Based Occupational Therapy Model (Rural CB-OT): Community-Codesigned Solution to support Aging in Place in Rural Underserved Areas.Research square · 2026Article
- The co-creation of Foot Selfie, a patient-centered mobile intervention to prevent diabetic foot ulcers.BMC health services research · 2026Article
- Co-Designing the Early Pain Intervention After Knee Replacement (EPIK) Model of Care for People With Persistent Pain After Knee Replacement.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Co-Designing Local Collaboration Between Social Services, Primary Healthcare, and the Third Sector-A Realist Process Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Addressing the social determinants of youth mental health in Newham and Northern Devon: reflections on co-design and systems change.BMC public health · 2026Article
- Co-constructing stories with patients with heart failure to envision future remote care possibilities: a qualitative interview and sketching study.Frontiers in digital health · 2026Article
- Continuity Is Essential: The Experiences of Co-Design Participants During the Implementation of a New Health Service.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- A qualitative study to refine and finalize the MedManageSCI prototype: A web-based toolkit to support medication self-management in adults with spinal cord injury/dysfunction.PLOS digital health · 2025Article
- In their own words: older persons' experiences of participating in co-creation.Research involvement and engagement · 2025Article
- Feasibility, Fidelity and Acceptability of a Person-Centred Care Transition Support Intervention for Stroke Survivors: A Non-Randomised Controlled Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The Perspectives of Healthcare Professionals and Managers on Patient Involvement in Care Pathway Development: A Discourse Analysis.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Experiences of participants in the co-design of a community-based health service for people with high healthcare service use.BMC health services research · 2024Article
- Article
- How do the existing homecare services correspond with the preferred service ecosystem for senior citizens living at home? A qualitative interview study with multiple stakeholders.Frontiers in health services · 2024Article
- Article
- Patient and public involvement in health research from researchers' perspective.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Using experience-based co-design to develop mobile/tablet applications to support a person-centred and empowering stroke rehabilitation.Research involvement and engagement · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite intentions to increase user participation in the development of health services, the concept of participation and how it unfolds within studies with a participatory design has rarely been addressed.
objectiveThe aim of this study was to describe how user participation manifests itself within a co-design process involving patients, significant others and health-care professionals, including potential enablers or barriers.
methodsThis study was conducted in the context of a co-design process of a new person-centred transition from a hospital to continued rehabilitation in the home involving three patients with stroke, one significant other and 11 professionals. Data were collected by observations during the workshops, semi-structured interviews and questionnaires.
resultsFour categories: 'Composition of individuals for an adaptive climate'; 'The balancing of roles and power'; 'Different perspectives as common ground for a shared understanding'; and 'Facilitating an unpredictable and ever-adaptive process', with all together nine subcategories, resulted from the analysis. Participation varied between individuals, groups and steps within the process, and on the topic of discussions and the motivation to contribute. DISCUSSION/
conclusionParticipation is not something that is realized by only applying participatory design methodology. Participation manifests itself through the interaction of the participants and their skills to handle different perspectives, roles and assignments. Participation is enabled by individual, group and facilitating aspects. Co-design processes should allow for varying levels of participation among the participants and throughout the process. PATIENT OR PUBLIC CONTRIBUTION: Patients, significant others and health-care professionals participated as co-designers of a care transition model between hospital and home.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.