ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07234656 (Patient-partnered Research), which is not on this map. Cited by 60 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Patient-partnered Research: a Key to Investigating Fear of Cancer Recurrence in Patients With Surgically Treated Kidney Cancer (PP-RECURK)
Who cites it
60 citing papers in PubMed, 1 synthesis or guideline pooled it, 98 citations in OpenAlex.
- Tools for assessing health research partnership outcomes and impacts: a systematic review.Health research policy and systems · 2023Pooled it
- Evaluating Meaningful Patient and Public Involvement in Intensive Care Research-A PEIRS-22 Survey.Nursing in critical care · 2026Article
- Building the future of patient-centred research: an EULAR PARE community of practice advancing patient research partner involvement in rheumatology.EULAR rheumatology open · 2026Article
- Article
- Strengthening Value Assessment and Health Economics and Outcomes Research Proposals Through Patient Engagement: Guidelines for Researchers.The patient · 2026Review
- Article
- Guidelines, Frameworks, and Trainings on Lived Experience and Caregiver Engagement in Research: Common Threads With Specific Considerations for Specific Subpopulations.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- 'Working Together to Meet in the Middle'. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Ripple effects of a patient & health-system partnered engagement project: a co-developed protocol.Research involvement and engagement · 2026Review
- Article
- Better Together: Tools to Aid Patient and Public Involvement in Evidence Synthesis and the Need for Consensus on Essential Reporting Items.Cochrane evidence synthesis and methods · 2026Article
- "Truly having a conversation with each member about their needs": accessibility considerations for the engagement of people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2026Article
- Scan, Screen, Support-A Digital Pathway for Assessing Supportive Care Needs in Oncology: Implementation Study.JMIR cancer · 2026Article
- Experiences of patients and public partners in codesign of Lynch Choices™: an evaluation study using the Patient Engagement In Research Scale (PEIRS-22).Research involvement and engagement · 2026Article
- Development of a patient advocate committee for a pediatric biobank.Research involvement and engagement · 2026Article
- Engagement of people with lived experience in the design and development of digital mental health interventions: A scoping review of engagement characteristics and impacts.Internet interventions · 2026Review
- Community engagement and implementation science: a hermeneutic review for implementation scientists.Implementation science communications · 2026Review
- The 'Values in Modelling' Framework for Patient and Public Involvement in Health Economics Modelling: Development and Application in the LEAP Model Project.PharmacoEconomics · 2026Review
- The CHI-RON Study: Using PCORnet® and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative.Medical care · 2026Article
- Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network.Journal of patient-reported outcomes · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveTo shorten the Patient Engagement In Research Scale (PEIRS) to its most essential items and evaluate its measurement properties for assessing the degree of patients' and family caregivers' meaningful engagement as partners in research projects.
methodsA prospective cross-sectional web-based survey in Canada and the USA, and also paper-based in Canada. Participants were patients or family caregivers who had engaged in research projects within the last 3 years, were ≥17 years old, and communicated in English. Extensive psychometric analyses were conducted.
results119 participants: 99 from Canada, 74 female, 51 aged 17-35 years and 50 aged 36-65 years, 60 had post-secondary education, and 74 were Caucasian/white. The original 37-item PEIRS was shortened to 22 items (PEIRS-22), mainly because of low inter-item correlations. PEIRS-22 had a single dominant construct that accounted for 55% of explained variance. Analysis of PEIRS-22 scores revealed the following: (1) acceptable floor and ceiling effects (<15%), (2) internal consistency (ordinal alpha = 0.96), (3) structural validity by fit to a Rasch measurement model, (4) construct validity by moderate correlations with the Public and Patient Engagement Evaluation Tool, (5) good test-retest reliability (ICC
conclusionsThe shortened PEIRS is valid and reliable for assessing the degree of meaningful patient and family caregiver engagement in research. It enables standardized assessment of engagement in research across various contexts. PATIENT OR PUBLIC CONTRIBUTION: A researcher-initiated collaboration, patient partners contributed from study conception to manuscript write-up.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.