Evidence map›Paper›PMID 33729163›Full record

ArticleJMIR formative research2021

Mind Your Data: Privacy and Legal Matters in eHealth.

Catharina M L Zegers, Annemieke Witteveen, Mieke H J Schulte, Julia F Henrich, Anouk Vermeij, Brigit Klever, Andre Dekker

Open access · goldAbstract read
In one paragraph

Article in JMIR formative research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
3.0field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 11 citations in OpenAlex.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 7 institutions in 1 country.

Catharina M L Zegers *Digital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0002-9772-0869
Annemieke WitteveenDigital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0001-5581-6478
Mieke H J SchulteDigital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0002-4295-1141
Julia F HenrichDigital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0001-6659-3994
Anouk VermeijDigital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0002-4637-1654
Brigit KleverDigital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0001-8789-1296
Andre DekkerDigital Society Health & Well-being, The Hague, Netherlands.ORCID https://orcid.org/0000-0002-0422-7996
Leiden University · NLMaastricht University Medical Centre · NLMaastro Clinic · NLTilburg University · NLUniversity Medical Center Groningen · NLUniversity of Twente · NLVrije Universiteit Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The health care sector can benefit considerably from developments in digital technology. Consequently, eHealth applications are rapidly increasing in number and sophistication. For successful development and implementation of eHealth, it is paramount to guarantee the privacy and safety of patients and their collected data. At the same time, anonymized data that are collected through eHealth could be used in the development of innovative and personalized diagnostic, prognostic, and treatment tools. To address the needs of researchers, health care providers, and eHealth developers for more information and practical tools to handle privacy and legal matters in eHealth, the Dutch national Digital Society Research Programme organized the "Mind Your Data: Privacy and Legal Matters in eHealth" conference. In this paper, we share the key take home messages from the conference based on the following five tradeoffs: (1) privacy versus independence, (2) informed consent versus convenience, (3) clinical research versus clinical routine data, (4) responsibility and standardization, and (5) privacy versus solidarity.

Indexed as

dataeHealthprivacy

Identifiers

PMID33729163
PMCPMC8075039
OpenAlexW3124789454

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.