ArticleBMJ open2021
Parents' Active Role and ENgagement in The review of their Stillbirth/perinatal death 2 (PARENTS 2) study: a mixed-methods study of implementation.
Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Neonatal near-miss audits: a systematic review and a call to action.BMC pediatrics · 2023Pooled it
- Identifying Key Areas to Improve Care for Families Around the Time of Stillbirth or Neonatal Death: A Survey of Maternity Services in Australia.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Article
- Community engagement in maternal and perinatal death surveillance and response: a realist review.BMC pregnancy and childbirth · 2025Review
- Verbal Information From Parents About Stillbirth: The VIPS Study (Phase One).The Australian & New Zealand journal of obstetrics & gynaecology · 2025Article
- Family Interviews Improve Health Service Recommendations in Mortality Review Process: A Mixed-Methods Assessment.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Current approach and attitudes toward neonatal near-miss and perinatal audits: An exploratory international survey.The Australian & New Zealand journal of obstetrics & gynaecology · 2023Article
- Bereaved parents involvement in maternity hospital perinatal death review processes: 'Nobody even thought to ask us anything'.Health expectations : an international journal of public participation in health care and health policy · 2023Review
- Stillbirth: prevention and supportive bereavement care.BMJ medicine · 2023Review
- Protocol for the development of a core outcome set for stillbirth care research (iCHOOSE Study).BMJ open · 2022Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveWhen a formal review of care takes places after the death of a baby, parents are largely unaware it takes place and are often not meaningfully involved in the review process. Parent engagement in the process is likely to be essential for a successful review and to improve patient safety. This study aimed to evaluate an intervention process of parental engagement in perinatal mortality review (PNMR) and to identify barriers and facilitators to its implementation.
designMixed-methods study of parents' engagement in PNMR.
settingSingle tertiary maternity unit in the UK.
participantsBereaved parents and healthcare professionals (HCPs).
interventionsParent engagement in the PNMR (intervention) was based on principles derived through national consensus and qualitative research with parents, HCPs and stakeholders in the UK. OUTCOMES: Recruitment rates, bereaved parents and HCPs' perceptions.
resultsEighty-one per cent of bereaved parents approached (13/16) agreed to participate in the study. Two focus groups with bereaved parents (n=11) and HCP (n=7) were carried out postimplementation to investigate their perceptions of the process.Overarching findings were improved dialogue and continuity of care with parents, and improvements in the PNMR process and patient safety. Bereaved parents agreed that engagement in the PNMR process was invaluable and helped them in their grieving. HCP perceived that parent involvement improved the review process and lessons learnt from the deaths; information to understand the impact of aspects of care on the baby's death were often only found in the parents' recollections.
conclusionsParental engagement in the PNMR process is achievable and useful for parents and HCP alike, and critically can improve patient safety and future care for mothers and babies. To learn and prevent perinatal deaths effectively, all hospitals should give parents the option to engage with the review of their baby's death.
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