Evidence map›Paper›PMID 33717314›Full record

ArticleAsian bioethics review2019

An Ethics Framework for Big Data in Health and Research.

Vicki Xafis, G Owen Schaefer, Markus K Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun and 2 more

Abstract read
In one paragraph

Article in Asian bioethics review, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
52citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

52 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. The Continuity Trap in Data Science Health Research.Journal of medical Internet research · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Vicki XafisCentre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.ORCID 0000-0002-5104-9686
G Owen SchaeferCentre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.ORCID 0000-0002-6915-6148
Markus K LabudeCentre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.ORCID 0000-0002-5352-3986
Iain BrassingtonCentre for Social Ethics and Policy, School of Law, University of Manchester, Manchester, UK.ORCID 0000-0002-1097-0567
Angela BallantyneDepartment of Primary Health Care & General Practice, University of Otago, Dunedin, New Zealand.ORCID 0000-0003-2666-9557
Hannah Yeefen LimDivision of Business Law, College of Business, Nanyang Technological University, Singapore.
Wendy LipworthSydney Health Ethics, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.ORCID 0000-0002-0234-657X
Tamra LysaghtCentre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.ORCID 0000-0002-7125-4206
Cameron StewartThe University of Sydney Law School, Sydney, Australia.ORCID 0000-0003-3625-0899
Shirley SunSchool of Social Sciences, College of Humanities, Arts, & Social Sciences, Nanyang Technological University, Singapore.
Graeme T LaurieSchool of Law and JK Mason Institute for Medicine, Life Sciences and the Law, University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-1571-8272
E Shyong TaiSaw Swee Hock School of Public Health, National University of Singapore, Singapore.ORCID 0000-0003-2929-8966

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an

Indexed as

Artificial intelligenceCross-sectorial dataData repositoriesEthics frameworkHealth and researchOpen sharingPrecision medicinePublic-private partnershipReal-world evidence

Identifiers

PMID33717314
PMCPMC7747261

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.