ArticleInternational urogynecology journal2021
Social media analytics of overactive bladder posts: what do patients know and want to know?
Article in International urogynecology journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed, 12 citations in OpenAlex.
- Social Media in Urologic Healthcare: Transforming Treatment, Management, and Online Medical Communication.International neurourology journal · 2025Article
- Impact of exercise on outcomes among Chinese patients with Crohn's disease: a mixed methods study based on social media and the real world.BMC gastroenterology · 2024Article
- "There is a lot of shame that comes with this": A qualitative study of patient experiences of isolation, embarrassment, and stigma associated with overactive bladder.Neurourology and urodynamics · 2024Article
- Patients' perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Patients' perspectives on, experience with and concerns about crohn's disease: insights from Chinese social media.BMC gastroenterology · 2023Article
- Why Patients Fall Through the Cracks: Assessment of Patients' Overactive Bladder Treatment.Journal of women's health (2002) · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveTo assess women's knowledge, patient experience, and treatment decision making regarding overactive bladder (OAB) using digital ethnography.
methodsOnline posts were identified using a data mining service. Two hundred randomized posts were reviewed and coded using grounded theory. We then applied a latent Dirichlet allocation (LDA) probabilistic topic modeling process to review the entire collection of identified posts.
resultsA total of 2618 posts by 1867 unique users from 203 different websites were identified. Our analysis yielded six themes: the impact of OAB on quality of life, patient-physician interactions, online engagement, symptom management, patient knowledge acquisition, and alternative therapies.
conclusionOverall, online communities are a source of support for women to self-manage the OAB symptom complex and help overcome treatment pathway challenges. Digital ethnography provides insight into patient knowledge and barriers to patient-centered care, which are important to improve patient outreach. Additionally, we identify similar findings to prior work, indicating the reliability of studying social media.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.