ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Patient and carer experiences of nutrition in cancer care: a mixed-methods study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it, 24 citations in OpenAlex.
- Systematic Review of Patient Preferences and Experiences Regarding Dietetic Outpatient Care.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025Pooled it
- Meaningful consumer involvement in cancer care: a systematic review on co-design methods and processes.JNCI cancer spectrum · 2024Pooled it
- 'It's Not About the Food'-Understanding the Lived Experience of Patients Who Developed Hospital-Acquired Malnutrition (HAM) and That of Their Carers.Healthcare (Basel, Switzerland) · 2026Article
- Understanding nutrition challenges and information needs of women undergoing cytoreductive surgery for ovarian cancer: a study protocol for an experience-based co-design methodology.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Experiences of weight management during rehabilitation in breast cancer survivors: A qualitative study.Asia-Pacific journal of oncology nursing · 2025Article
- Qualitative study on adherence to oral nutritional supplements in cancer patients: a social cognitive theory perspective.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Investigating Nutrition and Supportive Care Needs in Esophageal and Gastric Cancer Survivors: A Cross-Sectional Survey.Healthcare (Basel, Switzerland) · 2025Article
- "One Size Doesn't Fit All": Nutrition Care Needs in Esophageal and Gastric Cancer Survivors-A Qualitative Study.Nutrients · 2025Article
- Diet and physical activity behaviors: how are they related to illness perceptions, coping, and health-related quality of life in young people with hereditary cancer syndromes?Journal of behavioral medicine · 2024Article
- Improve the quality of end-of-life in cancer patients using social representations of nutrition.Frontiers in oncology · 2024Article
- Psychosocial Factors and the Need for Multidisciplinary Support in Nutrition Counselling for Cancer Chemotherapy Patients.Nutrients · 2023Article
- Realfood and Cancer: Analysis of the Reliability and Quality of YouTube Content.International journal of environmental research and public health · 2023Observational
- "What Should I Eat?"-Addressing Questions and Challenges Related to Nutrition in the Integrative Oncology Setting.Current oncology reports · 2022Review
- Characteristics of Users of the Cook for Your Life Website, an Online Nutrition Resource for Persons Affected by Cancer: Descriptive Study.JMIR cancer · 2022Article
- Contemporary Insights into Cancer Cachexia for Oncology Nurses.Asia-Pacific journal of oncology nursingReview
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeEvidence-based guidelines exist to guide health professionals and services about cancer nutrition care; however, the views of cancer patients and carers are not well understood. This study aimed to understand the experience and needs of cancer patients and carers regarding nutrition care across the care continuum.
methodsUsing a mixed-methods approach, cancer patients and carers completed a cross-sectional online survey and focus groups. Participants were recruited through health services and cancer organisation consumer networks via email distribution lists, e-newsletters, and social media. Focus groups were audio-recorded, transcribed, and analysed using content analysis.
resultsOf 165 survey respondents, only 51% (n=84) reported they talked to a health professional about their nutrition care at any time-point, and only 32% with a dietitian. The majority (84%) of patients and carers felt nutrition was important at one or more time-points in their cancer path, indicating during and after cancer treatment the most important. However, perceived support from health professionals for nutrition care was deemed low at all time-points. Five focus groups were held (n=20; 16 patients, 2 carers, 2 both patients/carers) and five themes emerged: nutrition information, experiences and need; control over diet and nutrition; importance and value of nutrition; access to support; what optimal nutrition care looks like.
conclusionPatients and carers felt nutrition was important during their cancer path, but perceived support from health professionals for nutrition care was low. This study has highlighted patient and carer nutrition experiences that will inform development of a co-designed optimal cancer nutrition care pathway.
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