ArticleInternational journal for equity in health2021
"A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities.
Article in International journal for equity in health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- The Global Impact of COVID-19 Control Measures on People With Dementia Living at Home and Their Carers: A Systematic Review of Quantitative and Qualitative Research Across 27 Countries.Brain and behavior · 2025Pooled it
- Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living With Dementia (PLWD) in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Research on dementia and inequalities in care and support - a map of the terrain and discussion of key issues.International journal for equity in health · 2026Review
- Article
- Article
- Dementia-Friendly Transportation Services: A Scoping Review.The Gerontologist · 2024Article
- Do people with dementia and carers get what they need? Barriers in social care and carers needs assessments.Dementia (London, England) · 2024Article
- The Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers: A Cross-Sectional Mixed Methods Study Using Qualitative and Economic Analyses.International journal of environmental research and public health · 2024Article
- Co-producing a board game to learn and engage about dementia inequalities: First impacts on knowledge in the general population.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Caring for people with dementia during the COVID-19 pandemic:a systematic review.Dementia & neuropsychologia · 2024Article
- A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Using digital technologies to facilitate social inclusion during the COVID-19 pandemic: Experiences of co-resident and non-co-resident family carers of people with dementia from DETERMIND-C19.International journal of geriatric psychiatry · 2023Article
- Protocol of a feasibility randomised controlled trial of Empowered Conversations: training family carers to enhance their relationships and communication with people living with dementia.NIHR open research · 2023Article
- Psychodrama with persons with dementia on zoom: Proof of concept.Dementia (London, England) · 2022Article
- Limited receipt of support services among people with mild-to-moderate dementia: Findings from the IDEAL cohort.International journal of geriatric psychiatry · 2022Article
- A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care.Journal of patient experience · 2022Article
- A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers.Alzheimer's & dementia (New York, N. Y.) · 2022Article
- The Impact of Demographic, Socio-Economic and Geographic Factors on Mortality Risk among People Living with Dementia in England (2002-2016).International journal of environmental research and public health · 2021Article
- "Nobody Seems to Know Where to Even Turn To": Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands.International journal of environmental research and public health · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
17 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSocial support services such as day care centres are important in post-diagnostic dementia care to enable people living with dementia stay at home for longer. Little research has addressed potential inequalities in access, with no research on variations before and since COVID-19. The aim of this study was to explore inequalities in social support service usage before and since the pandemic.
methodsUnpaid carers and people living with dementia were interviewed over the phone about their experiences of accessing social support services before and since the COVID-19 pandemic. Transcripts were analysed for key themes using inductive and deductive thematic analysis.
resultsFifty participants (42 unpaid carers; eight people living with dementia) were interviewed, and five themes identified: (1) Service issues; (2) Access issues; (3) Relying on own initiative; (4) New inequalities due to COVID-19; and (5) Missing out on the benefits of support services. Participants reported transport, finances, and location as factors reducing their ability to access support service pre-COVID, with inequalities remaining and at times exacerbated since. Carers and people living with dementia also reported struggling with accessing basic necessities during COVID, including food and medicines.
conclusionsConsidering the benefits of accessing support services, resourced procedures and facilities are needed to maintain access to support services with more accessible remote support provision, enabling people from all backgrounds to access the care they need.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.